Angioedema?

[Green12]

I didn't know exactly where to post this, I thought maybe here would be appropriate as a possible symptom?

I suffer with angioedema, an anaphylactic type hive/rash outbreak, and wondered if anyone else experienced this as well? It is similar to hives, but very different, maybe starting out as a small splotchy patch and then they grow into very large hives (or wheels). They are very red and hot, and very painful. Often they are on the feet, hands, elbow, ears, eyelid, lips, but for me I have also had them on the abdomen, back, all up and down the legs and arms, everywhere. And they last for days once they get started. They occur monthly, seemingly corresponding with my cycle and hormones for some reason, like at a specific time of the month.

[hiveman]

I didn't know exactly where to post this, I thought maybe here would be appropriate as a possible symptom?

I suffer with angioedema, an anaphylactic type hive/rash outbreak, and wondered if anyone else experienced this as well? It is similar to hives, but very different, maybe starting out as a small splotchy patch and then they grow into very large hives (or wheels). They are very red and hot, and very painful. Often they are on the feet, hands, elbow, ears, eyelid, lips, but for me I have also had them on the abdomen, back, all up and down the legs and arms, everywhere. And they last for days once they get started. They occur monthly, seemingly corresponding with my cycle and hormones for some reason, like at a specific time of the month.

Me too... search for my posts and you'll get an idea of my situation (hiveman). I still don't believe I really have celiac disease. I think the doctors are so excited about diagnosing it as the newest "fad" that they close their mind to anything else. I feel the same way I did before going gluten-free and now I'm the guy with severe angioedema/hives/pain and I can't eat gluten products.

Have you had any luck with getting the swelling under control? I hate prednisone but it is the only thing that works when it gets really bad. I tried acupuncture... fun, relaxing, ok but short term results.

[hiveman]

I just realized that you and I had swapped stories already in other posts... sorry about that. I was doing a new search through the forum and hoping there were more people with the same issues but I guess we are the only two out there with this (think of those odds... maybe we should play the lottery).

I've been in pain the past couple of days and I tend to go back here for a search when I'm getting frustrated again.

Well... let me know if you've had any progress. Again, apologize for not realizing I was responding to someone I've responded to before.

Hiveman