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susiek

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susiek Apprentice

I just have one big question: why do I get sick almost every time I eat at a restaurant, no matter what I might eat? Last week Red Lobster nearly killed me! lol Looking back, I didn't drown myself in gluten.

Is it mostly a cross-contamination problem?

Makes me want to avoid eating out at all!

I'm no officially dx yet. Just a family history and all the symptoms. After my blood tests next week I am going gluten-free.


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frenchiemama Collaborator

It's either going to be cross contamination, or maybe a gluten-containing ingredient that was overlooked (such as a seasoning or something).

Guhlia Rising Star

Red Lobster is definitely not the most Celiac friendly place... Try eating off the gluten free menu at Outback or PF Changs first and see if you still feel horrible.

key Contributor

I don't know, but I gave up eating out for two months and felt better then I have in a year! Even with stuff that should be safe. Anyway, I tried again without success at Chipotle's. I know it isn't in my head, but it is very frustrating!

Monica

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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