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Need All Of Your Input Once Again, Dx Negative For Celiac


Chelle15

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Chelle15 Apprentice

The doctor is going to call me. But they said there was lymphocytosis. Which from what I read means there are a lot of white blood cells, and that means it was/is an infection. But it also means that the infection has been there for over 2 months. Isn't that a little long?

And I did still have elevated gliadin(sp?) antibodies in my blood tests. Does that mean I have allergies to some type of food and does that mean they will test me?

Lastly, I assume that any of you will say yes, because it has been said in the past, but should I still try going gluten free?

Thank you for all of your help! You have all helped me through so much.


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Chelle15 Apprentice

Hmmmmm, in researching more, it appears that it can have something to do with a gluten sensitivity(sp?) or celiac, but I have a hard time understanding what I am reading.

hannahsue01 Enthusiast

I am unsure if it is related directly to celiac or not but I have a number of blood tests over the past year and a half with most of them coming back with high white blood cell counts. I was treated with antibiotics for over three months before the first significant drop but it went back up and I quit with the antibiotics because it didn't really seem to help much. I had blood tests done again for a sugar check and my cell count was up again. My grandmother who has been diagnosed with celiac has had big problems for a long time keeping her white cell count down as well.

Chelle15 Apprentice

Thank you. Seems to me it would be related to an autoimmune disease, no?

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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