Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

For Those W/ Hypothyroid Experience


Nevadan

Recommended Posts

Nevadan Contributor

After experiencing some hypothyroid symptoms I did some research on ways to measure/dx this and turned up several labs that do saliva testing. Does anyone have experience (positive or negative) with this type testing versus the more conventional blood tests with respect to thyroid issues? Thanks.

George


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

I have always used blood tests for thyroid and saliva tests for hormones and adrenals. I have heard good and bad reports re thyroid saliva testing. Regardless of the test there are always false negatives and positives - so other symptoms such as body temps and extreme fatigue should also be taken into consideration. You need a Dr that looks at the total picture - not just a lab report. ;)

Nevadan Contributor
You need a Dr that looks at the total picture - not just a lab report. ;)

Thanks for the reply. So far my dr is proceeding with treating my symptoms by prescribing a very low dose of Armour Thyroid (15 mg/ day) just to see if any of my symptoms (low body temp, cold sensitivity, thinning hair, and slow recovery after exercise) respond. [My TSH, free T3 & free T4 are within the "normal" range but tend toward the lower quartile.] After doing quite a bit of web research, I'm beginning to suspect an adrenal problem as well (body temps are very variable from day to day). After the first 3-4 days of meds, even with this small dosage, my average afternoon temp has increased about one degree - I was running in the 95's; now I'm in the 96's.

I'm mostly trying to get prepared for my next dr appt later this month so I know which type testing to prefer. I expect he will order more tests, so I would like to get the most reliable results. I've found stopthethyroidmadness.com website and they have a preference for saliva testing for adrenal function. The two labs doing saliva testing that I've explored are DiagnosTech and ZRT. The first one appears to also sell supplements based on their testing results which I find to be a conflict of interest. That leaves ZRT. There are probably others.

Since this is all new to me, it's a bit bewildering. All feedback is much appreciated!

Thanks again.

georgie Enthusiast

I followed sttm guidelines for dosing Armour and adrenal, and found it quite good. Its all come from old text books and Drs - so is an easy guide if you can't get to read dozens of books and research papers. I think that 15mg is a baby dose and is meant to be increased every 15 mg when symptoms return. In the early stages that may mean every week or so. The ave Armour dose is 120mg - 180mg, and multi dosed, but it should be dosed until symptoms go away not just by labs. As you get to that dose you increase` more slowly every month or so. Hope your Dr knows this ;) But you will need adrenal testing. www.canaryclub.org is another I think. 4 saliva tests a day is the most accurate. Do you know how to do the temp graphs ? www.drrind.com

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

    2. - trents replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      I was diagnosed with celiac 15 years ago. in,

    3. - Richard Rusnak posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      I was diagnosed with celiac 15 years ago. in,

    4. - Russ H replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      8

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, this was a shingles warning, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
    • Richard Rusnak
      My question is it possible that Barley is OK > I know wheat gives me stomach pain, rash, and severe diarrhea.
    • Russ H
      Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.  
    • trents
      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
×
×
  • Create New...