Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Newbie, A Lot Of Confusion...


Lindsay GFMom

Recommended Posts

Lindsay GFMom Apprentice

My 4.5 yo son has the following results from Enterolab:

Gluten Sensitivity Stool and Gene Panel Complete

Fecal Antigliadin IgA 29 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 21 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Run-4-Jesus Rookie

I'm 16 and I've been Celiac my whole life. Neither of my parents nor any of my 6 siblings have Celiac. Hopefully this will help you:

1. I have my own toaster. He will definitely need his own.

2. I don't think it's necessary to clean the microwave every time you put a gluten food inside because gluten can't magically get into the atmosphere and make him sick.

3. I'm the only one who eats a gluten-free diet in my family. #1 It would be entirely too expensive to feed the whole family with gluten free foods #2 My siblings would go CRAZY without wheat #3 My dad would NEVER give up his gluteny foods ;) So, it's not necessary for your whole family to go gluten-free unless you don't want to cook separate meals for your Celiac son and would rather have everyone eating the same thing.

4. You don't have to buy new pots and pans and dishes and such. Just make sure everything gets washed well, hot water and soap work fine.

Luckily he's young and it's good that he's diagnosed early. I was diagnosed when I was 2 so I've grown up knowing how to read labels on foods, how to order from restaurants, etc.

He should learn to accept this new part of his life soon, and he'll be able to be a "normal" kid! I promise.

Link to comment
Share on other sites
Ursa Major Collaborator

Hi Lindsay, and welcome to this board.

I have seen many parents here reporting their kids having significant growth spurts after starting a gluten-free diet, and gaining weight (if they were underweight).

I wouldn't use the Bosch mixer for making anything gluten-free, unless you can be absolutely, 100% sure that you are able to completely scrub and clean every little crack of it.

Your son needs his own toaster, no way around that one. Also, I wouldn't cook two different meals for supper, there is no need for that. Most foods you eat for supper are naturally gluten-free anyway, like potatoes, meat and vegetables (and of course, fruits are gluten-free). You can easily thicken gravy with corn starch or light buckwheat flour (which I use, I like it better than corn starch for gravy). My family loves my gravy!

If you have pasta for supper, you can use rice pasta (lots of people like Tinkyada, but there are other good brands). I served two different types of lasagna last weekend, when I had a lot of guests. I can't eat it, but one of my daughters has a wheat allergy, and is intolerant to the combination of meat and tomato. So, one lasagna was a chicken lasagna with a white alfredo sauce, and the other a traditional one with ground meat and tomato sauce. Both were made with rice pasta, and NOBODY noticed! My daughter was the only one who knew, because I let her know that the white lasagna was safe for her to eat.

Also, you can't drain gluten-free pasta through your regular plastic colander, because it isn't possible to get all the gluten out, no matter how hard you try.

You can also bake great gluten-free cakes. When you have a birthday in the family, it would be much better if there would be a gluten-free cake, so your son won't have to feel left out.

'Official' gluten-free foods that are replacements for gluteny foods are expensive. Those aren't necessary for anybody, and because they are very high in carbohydrates and sugar, should ideally only be used for the occasional treat.

Make sure you check all personal care products like shampoo, conditioner, toothpaste, bubble bath, chap stick, soap, lotion etc. for gluten. If it says something like wheat germ oil, barley extract or oat bran (Aveeno), replace it. Also, make sure his vitamins are gluten-free (many are not). Vitamin E is often derived from wheat germ oil, and it should be confirmed that his is not.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...