Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Still Struggling ..


Karwei5

Recommended Posts

Karwei5 Apprentice

I am still having issues with my son.

He was diagnosed in January by biopsy.

His main symptom was throwing up everyday and multiple times along with pain and grumbling.

He got the sickest after eating chocolate at Halloween. At that time he could not eat any chocolate w/o throwing up and a lot of pain.

We started him on the gluten free diet.

I did not change soaps/shampoos though.

He showed improvement.Throwing up slowed down. He recovered a lot faster and not everyday.

Late Feb. March he had a few weeks w/o throwing up.

He snuck pretzels about 1.5-2 months ago and I am having a hard time getting him better again.

Is the chocolate getting him sick a strong indicator of some other sensitivities to other foods?

WE also were doing a lot of remodeling in our house could there be dust that is making him sick?

I have allowed him to have food with natural flavoring.

I think that is all I have slacked on.

I told my girls they can not cook anything with flour in it for awhile to see if we are having any cc issues.

I have orders to retest his ttg and am going to take him in this week to see if his antibodies are still up.

I am not sure how to figure out if other foods are giving him problems.

I feel bad he is still having problems. He has missed most of his summer school because of it.

Karol mom to Billy

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emorgan816 Newbie

I'm sorry to hear he is not feeling better. Did you also cut out dairy and sugar? I would find an allergist and take him there. I went to one and discovered I'm allergic to many things and once I eliminated them I am starting to feel much better. Dairy and sugar are the two major ones I eliminated - but from what I understand dairy intolerance goes along with Celiac (I was diagnosed end of March and still learning about this diesease)

I do cheat on the no-sugar (I have a huge sweet tooth!) When I eat sugar I get bloated and have abdomin pain - no throwing up. When I have the dairy tho I sometimes get sick from that.

I hope you can narrow it down - you may have to gradually add/subtract things from his diet to really get a handle on what is making him ill. But I would find a good allergist for him. As you mentioned, it could be environmental (since you are remodeling).

Good luck!

Elizabeth

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,210
    • Most Online (within 30 mins)
      7,748

    Chelsi
    Newest Member
    Chelsi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
×
×
  • Create New...