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jessiU

Why Am I Hurting Again?

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I self diagnosed myself with celiacs about 5 months ago. Prior to this I was having severe right sided pain for 2 years and had the works done, but they couldn't figure out what was wrong with me. When I possed Celiacs to my GI, he said "I am just doing this test for you because I don't think you have it". My blood test was negative. Although when I went gluten-free, I was doing great for a few months and had no pain, but recently for the past 31/2 weeks I have been in severe pain again. I am wondering if I got something, and my body is much more sensitive now that that I have been gluten-free? Has anyone ever been in pain this long? Is it normal?

I know a little girl on the Gluten-free Casein-free diet whom pays attention to not only foods but also environmental substances such as craft supplies, lotions... I just looked at a lot of the products I use such as: pantene shampoo and conditioner, hand soap, Bath & Body Works lotions and they all contain oats (avena sateva). Could I be more sensitive now and reacting to these products? Is it normal for people with celiacs to buy certain soaps, lotions, deoderant, avoid touching foods with gluten in them? Does anyone have suggestions as to where I can buy products at the store instead of the ones I am using if so?

My wedding is in a few weeks and then I will off on a cruise for my honeymoon in the Southern Carribean. I am trying to figure out what I can do to feel good for my wedding! Thank You.

Jessica

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I self diagnosed myself with celiacs about 5 months ago. Prior to this I was having severe right sided pain for 2 years and had the works done, but they couldn't figure out what was wrong with me. When I possed Celiacs to my GI, he said "I am just doing this test for you because I don't think you have it". My blood test was negative. Although when I went gluten-free, I was doing great for a few months and had no pain, but recently for the past 31/2 weeks I have been in severe pain again. I am wondering if I got something, and my body is much more sensitive now that that I have been gluten-free? Has anyone ever been in pain this long? Is it normal?

I know a little girl on the Gluten-free Casein-free diet whom pays attention to not only foods but also environmental substances such as craft supplies, lotions... I just looked at a lot of the products I use such as: pantene shampoo and conditioner, hand soap, Bath & Body Works lotions and they all contain oats (avena sateva). Could I be more sensitive now and reacting to these products? Is it normal for people with celiacs to buy certain soaps, lotions, deoderant, avoid touching foods with gluten in them? Does anyone have suggestions as to where I can buy products at the store instead of the ones I am using if so?

My wedding is in a few weeks and then I will off on a cruise for my honeymoon in the Southern Carribean. I am trying to figure out what I can do to feel good for my wedding! Thank You.

Jessica

Jessica, yes I think it's a good chance that you are now more sensitive and react to things that weren't obvious before. The same thing happened to me and I've had the right-side pain off and on for 6 months now. Had every test known to doc and mankind. It comes and goes and gets worse with accidental glutenings. You should definitely throw out (or give away) any personal care product with wheat or oats (i've even seen barley in Clinique cosmetics). Some Pantene are ok, do a search here under the "products" forum.

Good luck and have a great wedding and honeymoon- pain free I hope!


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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