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cyberprof

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cyberprof last won the day on February 13 2012

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  1. Is it a stomach or GI tumor? It is possible, as the tumor is sometimes a result of damage to DNA after birth. http://www.cancer.org/Cancer/GastrointestinalCarcinoidTumor/DetailedGuide/gastrointestinal-carcinoid-tumors-risk-factors
  2. Thanks Raven. I know your history too and it helps that others here understand. I think she and my dad have both had the blood test for celiac and were negative. That's the killer. But my blood was negative (while on gluten but after positive biopsy that found celiac by "accident"), my son...
  3. I'm going to resurrect this old thread rather than start a new one. I know the OP isn't still around but raven and mushroom are. Hope to get input from anyone who has polymyalgia rheumatica. My mom was diagnosed with polymyalgia rheumatica this week. She's been in terrible pain for months and...
  4. My son is strongly casein-intolerant (and likely celiac, though undiagnosed) and I was undiagnosed celiac when pregnant. He was always fussy as a baby and never felt "well" as a child, but we didn't isolate his reaction to cow's milk protein until he was 15. I'm glad you're interested in that...
  5. Thanks Sue. Yeah, I'm whining. (I'm 53 too btw.)
  6. Yes, true about the diseases, but I'm the primary breadwinner and my ability to earn a paycheck is dependent upon being able to see and healthy enough to work. I've got two kids in college, a boat-load of debt and I can't afford to be out of work or to retire. Nevermind the fact that I don't want...
  7. It's strange to be in too "rare" disease groups, isn't it? Makes me feel weird, somehow. And I thought I was adjusted to celiac but the Fuchs on top makes me sad.
  8. Gina, welcome to the gluten-free forum! It's a good place for celiac info. I have noticed that my eyes are good then bad then good again. I hadn't noticed any connection to gluten though but maybe I'll start a log. I am very curious if there's a gluten/fuch's connection. My dad is the...
  9. So far, you and I are the only ones. I haven't found any link in medical journals but like other diseases related to celiac, there isn't much research because celiac is relatively rare and fuchs is more rare. Have you had any cornea transplants?
  10. Anyone here also have Fuchs' dystrophy, also known as Fuchs' endothelial dystrophy? It's where the cornea of your eye starts to go bad, causing blindness if not surgically treated by replacing the cornea. About 1% of the population has it and it's genetic. My dad and my sister have it and I...
  11. Hi, I just read your post about your wonderful recovery after going gluten-free...(no pain, etc) It's very encouraging! THANKS for sharing it. (I had the early menopause thing too, four miscarriages..among a million other symptoms:<(...) but I am hopeful now that I am gluten-free! :>) things are starting to improve.

    So, thanks!

  12. OK, I just did a search on the "Support Groups" forum and found this thread: It looks like these people are in mainland China, but they have some good hints. Maybe send these posters a private message (PM) and ask for ideas.
  13. Gosh, that's a hard one. I love to travel but have decided that with celiac, I won't be going to Asia unless I can go with someone who is fluent in the language. It might help to know if you're there for school or if you work for a US corporation or are with a friend/family member who is Chinese...
  14. I know that there are some teas that have gluten, especially Japanese teas that have barley in them. Some herbal teas may too. I don't know about Earl Grey, except that I haven't had any in 20 years because it made me sick (pre-diagnosis). I do always ask to see the label in a coffee shop, and...
  15. Add me to the list. Mine are always spiders and/or webs. I haven't had one in a while so maybe they were related to gluten. I always thought it was part of my other sleep habits, like talking in my sleep and not remembering later or getting up, walking across the room and turning off the alarm...