Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Couple Days After

norcalballa23

Recommended Posts

norcalballa23 Rookie
norcalballa23
Posted

Well to sum up how i was feeling, im 17 and all i was eating macaroni n cheese which has wheat in it. the past week iv been gluten free and am feeling prob 60% better which is great. im going to the docter in 2 days and he has no idea iv gone gluten free. so im worried it wont show in any future tests ill be doing. I definitely dont want to go back on gluten. my life has been hell the past 6 years. it got so bad i even thought of killing people, i was so insane of feeling like poop. and now i feel like i did in 4th grade and im just really happy to be getting better. i just want to know if this is enough for a diagnosis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

If the diet is helping you then you have your answer. If you do not feel the need to have a doctor confirm then just go ahead with the diet, you don't need anyones permission to not eat something that is poisoning you. Response to the diet is the real true test of whether it is needed or not. In addition if you are sent to a GI for confirmation most will want you back on gluten for testing that may or may not show up accurately anyway.

If you have only been gluten-free for a week you may want to consider calling your doctors office first thing in the morning and requesting a lab slip for a celiac panel. Then get your blood drawn immediately even if you need to wait a bit for an appointment. If you have only been gluten-free a week they may still pick up antibodies, if you are a person who would show up positive in the first place. Another thing to bear in mind is that your doctor knows your history, he knows how bothered you have been by the issues you have been having. Some doctors upon resolution of those issues will be smart enought to agree with celiac or gluten intolerance and consider that enough for diagnosis. So do talk to your doctor about it, even if you don't decide to go back on gluten, dietary response is valid and you may not see a whole lot of him after your gluten-free for a bit.

norcalballa23 Rookie
norcalballa23
Posted
  • Author
If the diet is helping you then you have your answer. If you do not feel the need to have a doctor confirm then just go ahead with the diet, you don't need anyones permission to not eat something that is poisoning you. Response to the diet is the real true test of whether it is needed or not. In addition if you are sent to a GI for confirmation most will want you back on gluten for testing that may or may not show up accurately anyway.

If you have only been gluten-free for a week you may want to consider calling your doctors office first thing in the morning and requesting a lab slip for a celiac panel. Then get your blood drawn immediately even if you need to wait a bit for an appointment. If you have only been gluten-free a week they may still pick up antibodies, if you are a person who would show up positive in the first place. Another thing to bear in mind is that your doctor knows your history, he knows how bothered you have been by the issues you have been having. Some doctors upon resolution of those issues will be smart enought to agree with celiac or gluten intolerance and consider that enough for diagnosis. So do talk to your doctor about it, even if you don't decide to go back on gluten, dietary response is valid and you may not see a whole lot of him after your gluten-free for a bit.

Yeah i actually already had blood drawn for celiac and stool tests, i just couldn't stand waiting even longer for the results that i still dont have. hopefully the bloods come back positive and i can be diagnosed.

ravenwoodglass Mentor
ravenwoodglass
Posted
Yeah i actually already had blood drawn for celiac and stool tests, i just couldn't stand waiting even longer for the results that i still dont have. hopefully the bloods come back positive and i can be diagnosed.

Just make sure you remember that there are a lot of false negatives with blood work. No matter what your test results you need to do the diet for a couple of months. Your results from the dietary exclusion are going to be the most valid result you can get. You have already seen a bit of improvement gluten-free so stick with it even if the tests say you don't need to. Inadaquate testing in the US leaves a lot of us suffering needlessly for years.

GlutenWrangler Contributor
GlutenWrangler
Posted

Go with what feels right. Follow your gut, and don't worry if your results come back negative. False negatives are very common. Just don't let a doctor tell you that you don't have it. Good luck,

-Brian

norcalballa23 Rookie
norcalballa23
Posted
  • Author
Go with what feels right. Follow your gut, and don't worry if your results come back negative. False negatives are very common. Just don't let a doctor tell you that you don't have it. Good luck,

-Brian

yeah man, i feel like i did in 5th grade. i guess iv felt like crap so long i got used to it. this diet is doing wonders.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat. In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue. A wedge...
    2. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired. I haven’t been to an allergist in a few years, I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young...
    3. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply
    4. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways. I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux. Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following...
    5. trents
      - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442
    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...