Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

I am in the diagnostic stage with Celiacs.

I have been chronically sick for the past 12 years and have been to doctor after doctor who have not been able to figure me out. I have been diagnosed with Fibromyalgia, Crohn's, Peripheral Neuropathy, Thyroid Disorder, and Major Depression but after reading a number of posts here I am wondering how much may be gluten related.

The Labs I have done so far include:

Immunoglobulin A: 438 mg/dL (ref 46-287)

Tissue Transglutaminase IgA: 38 units (>30= moderate to strong positive)

EMA= positive

and I have a biopsy scheduled for this week

I feel like my Drs are headed down the right path but aren't helping me understand what is going on. What do all these numbers mean? Have they ordered the right tests? Is it celiacs?

And then...where in the world do I start. I feel very overwhelmed!

Oh yeah....I work in a deli making sandwiches all day long. Is this going to be an issue if I am not eating the bread, just handling it?

Share this post

Link to post
Share on other sites

Sorry I can't help you on the test results, I never could get anyone to actually test me... diet works I stick to it....

So lets assume it is celiac disease...

You start with the basics......

Start with food.... basic meat and veggie's until you get past step 2...

step 2 is learn to label read..... its not easy but you will need to learn

step 3..... get paranoid.... about cleaning out your kitchen cupboards, go thru every label... what will not be eaten give to charity or a friend, you wont be needing it any more. (do not toss out your cookbooks you can adapt the recipes)

step 4... replace possible CC'ing dishes, pots, pans and other items

step 5... move on to hand lotions, shampoos and the like

step 6... realize its been so VERY long since you felt this good!

But ALWAYS take it one day at a time, the begining is the worst not knowing how to read a label and trying to remember all the suspect inredients takes a long time to learn and forever to master...

be patient, you didnt get this sick in 1 day and it will take more than 1 day to feel better.

READ... get busy searching the forums, buy books(my favorite is gluten free for dummies by dana korn)

Share this post

Link to post
Share on other sites

You have positive numbers for IGA, TTG, and EMA. You have celiac disease. A biopsy will just confirm it. Positive TTG indicates damage, which could mean that your biopsy WILL show flattened villi. But regardless, with those numbers you definitely need to go on a gluten-free diet. Start it after the biopsy. If you need any support with the diet, don't hesitate to ask. Good luck,


Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
What are your iron results?  Was ferritin (iron stores) taken?  Are you actually anemic (low hemoglobin)?  The results you posted are your Immunoglobulins.  Looks like your IgE is high, but then it is Spring and allergy season is supposed to be pretty bad this year (at least in the US).  What riggers your allergies (e.g. cats, horses, mold, etc.)? Have other autoimmune issues been ruled out that could cause tendinitis or vertigo?    
  • Blog Entries

  • ×
    • Create New...