Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

I Need Some Advice!


Suki

Recommended Posts

Suki Newbie

last summer I had severe diarrhea every day and was diagnosed with ibs. I did some research and cut out wheat from my diet altogether and felt so much better and rarely do I have diarrhea now. HOwever, I've been extremely bloated AND I have an itnestinal protozoa that the doctor doesn't really know much about other than it's hard to get rid of...anyway, I went to a gastro dr. and he totally dismissed my theory that wheat was causing my diarrhea. Now i have the opposite problem. Upon his advice I introduced wheat back into my diet. When I left his office ona Friday afternoon I went to work and ate a cookie. Went home and ate a fiber one bar and for dinner I had some soup that had wheat in it. The next morning I had a bagel andd from that afternoon on for two days I was in gut wrenching pain and could not be far from a toilet all weekend. I knew I was right, so I went back to mydr. and he said " you must have had a bug, it's NOT wheat" He also said that if it were wheat that I would have been born with that problem. I did test negative for celiacs disease by a blood test. I had been eating correctly for 2 - 3 months when I had the blood test. My feeling is that I'm intolerant or allergic to it because I ate a sub 2 days ago just to see one last time if he was right, and of course I was ill with cramping, pain, and diarrhea for almost 2 days. My question is, what test should I take next and what type of doctor would I go to that can tell me if I have an allergy or intolerance to wheat.?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Wheat is difficult to digest for anyone. So, if you have an intestinal protozoa, and conceivably other parasites in your intestines, then wheat definitely could cause symptoms even if you don't have celiac disease. I know that was the case for me.

I would google your parasite and see what herbal remedies for long term are suggested.

I had klebiella and citrobacter bacterias, babesia protozoa, and bartonella bacteria wreaking havoc in my intestines, and once I took care of that, I can now eat anything with no digestive issues. My symptoms looked just like celiac disease.

You might check out the Humaworm thread .... I had a lot of luck with that. I also took Theralac and Ultra Flora probiotics to build up the good stuff.

I did one round of Humaworm, then 90 days later did a second round. I was on Levaquin for 12 weeks for the Bartonella (a tick born infection). For the babesia (also a tick born infection) I took mepron and malarone plus antibiotics. You wouldn't blindly treat bart or babs without a proper Lyme specialist or proper testing.

Did your doctor tell you what kind of protozoa it was?

Nancym Enthusiast

Your doctor is an idiot. Try to find one that isn't so stupid. :)

Blood tests are not always positive when you have celiac disease. You aren't born with it. Sheesh, tell your doctor that he has to read something other than Golfing Digest to stay current with his field.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...