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Guest Talia

Can I Have Celiac With A Negative Biopsy And A Positive Elisa Panel

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Guest Talia

Hi Everyone,

I am sure i have Celiac, i have every symtom, and was sickly as a child. I am 55 now, and just had a endoscopy with 10 biopsies. all negative. I was gluten free for 3 months, but ate gluten for 2 weeks for the test. My ELISA panel was very high for wheat and gluten, Iam IGA deficient so I can't use that as an indicator. Would someone please help me figure this out.

Can celiac exist with what the doctor calls the gold standard of diagnosis of negative biopsy?

B)

i have fibro, pain disorder, thyroid disease,osteperosis, osteoarthritis, depression, periodontal disease, psoriosis, headaches, IBS, fatique, muscle weakness, family hx of sjogrens disease,

I would like one doctor to put the pioece4s together for me. what kind?

Thank you for your web site it is very helpful.. i have already learned a lot by reading other post.

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Hi Talia, and welcome to these boards.

With being gluten-free for three months, and only being back on gluten for two weeks, you were pretty much guaranteed a negative biopsy, despite probably having celiac disease. All your symptoms point towards celiac disease. With an IGA deficiency you would obviously have negative blood work results, too.

Your ELISA panel combined with a positive dietary response really is all the diagnosis you need to permanently stay away from gluten!

Unfortunately, there is no guarantee that ANY kind of doctor will know enough about celiac disease to 'put the pieces together', as most of them are woefully ignorant when it comes to celiac disease, including gastroenterologists (even though they are supposed to be the celiac disease specialists).

Personally, I think you have already put the pieces together yourself and don't need a doctor to tell you what to do. Even though you may need an endocrinologist to test for thyroid and adrenal problems.

I hope you feel better soon.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Guest Talia
Hi Talia, and welcome to these boards.

With being gluten-free for three months, and only being back on gluten for two weeks, you were pretty much guaranteed a negative biopsy, despite probably having celiac disease. All your symptoms point towards celiac disease. With an IGA deficiency you would obviously have negative blood work results, too.

Your ELISA panel combined with a positive dietary response really is all the diagnosis you need to permanently stay away from gluten!

Unfortunately, there is no guarantee that ANY kind of doctor will know enough about celiac disease to 'put the pieces together', as most of them are woefully ignorant when it comes to celiac disease, including gastroenterologists (even though they are supposed to be the celiac disease specialists).

Personally, I think you have already put the pieces together yourself and don't need a doctor to tell you what to do. Even though you may need an endocrinologist to test for thyroid and adrenal problems.

I hope you feel better soon.

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Guest Talia
Hi Talia, and welcome to these boards.

With being gluten-free for three months, and only being back on gluten for two weeks, you were pretty much guaranteed a negative biopsy, despite probably having celiac disease. All your symptoms point towards celiac disease. With an IGA deficiency you would obviously have negative blood work results, too.

Your ELISA panel combined with a positive dietary response really is all the diagnosis you need to permanently stay away from gluten!

Unfortunately, there is no guarantee that ANY kind of doctor will know enough about celiac disease to 'put the pieces together', as most of them are woefully ignorant when it comes to celiac disease, including gastroenterologists (even though they are supposed to be the celiac disease specialists).

Personally, I think you have already put the pieces together yourself and don't need a doctor to tell you what to do. Even though you may need an endocrinologist to test for thyroid and adrenal problems.

I hope you feel better soon.

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Guest Talia

thank you, for responding, being new the boards, I didn't even realize it until today.

It does fit together in a profile of celiac... especially the stuff as a child.

I didn't realize docs were so ignorant... it was like when my mom was dx with sjogrens disease.

I have always thought that fibromyalgia and IBS were words used when a real dx could

t be made. Hopefully with a change in diet and working with a nutritionist, I can turn my life around.

Everything is an effort.. I pray with the help of this board, and all the knowledgeable people I will one day have a life again.

B)

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I think the answer to your question is: Celiac is a term used for just one of the manifestations of a rather large spectrum of gluten sensitivity. Celiac being specific intestinal damage. It


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Guest Talia
I think the answer to your question is: Celiac is a term used for just one of the manifestations of a rather large spectrum of gluten sensitivity. Celiac being specific intestinal damage. It

Share this post


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Guest Talia
I think the answer to your question is: Celiac is a term used for just one of the manifestations of a rather large spectrum of gluten sensitivity. Celiac being specific intestinal damage. It

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