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MEH999

By MEH999
in Coping with Celiac Disease

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MEH999 Newbie
MEH999
Posted

I have recently been diagnosed with Celiac Disease (by blood test) and I have a few questions. I was having heart burn pains and now since being on a glutin free diet they have gone away but now I am having lower abdominal pain. I was woundering if anyone has had the same symtoms. I think that my small intestine is just healing but I don't know. My dotor said that It would take about a month before the inflimation does down. Is this true or am I suffering from somthing elce?

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Ursa Major Collaborator
Ursa Major
Posted

You probably need to eliminate dairy for at least a few months, as it will hinder healing. Soy could be the culprit as well.

JNBunnie1 Community Regular
JNBunnie1
Posted
I have recently been diagnosed with Celiac Disease (by blood test) and I have a few questions. I was having heart burn pains and now since being on a glutin free diet they have gone away but now I am having lower abdominal pain. I was woundering if anyone has had the same symtoms. I think that my small intestine is just healing but I don't know. My dotor said that It would take about a month before the inflimation does down. Is this true or am I suffering from somthing elce?

It's hard to be sure when you've just gone gluten free to know what to blame certain things on. It probably is best for you to eliminate dairy for about a month, then try again and see if you get that same pain. A lot of people are lactose intolerant for a time while healing.

RockHammer Rookie
RockHammer
Posted
It's hard to be sure when you've just gone gluten free to know what to blame certain things on. It probably is best for you to eliminate dairy for about a month, then try again and see if you get that same pain. A lot of people are lactose intolerant for a time while healing.

After years of abuse, your whole GI may be very unhappy. You might need to also eliminate anything hard to digest, like milk, corn, most uncooked fruits and veggies, and a long list of other things. Check in the book "The Gluten Free Bible. Against the Grain". It has a great deal of info on managing your gluten-free diet effort. The book by Green "Celiac Dx, the Hidden epedimic" (these titles may not be exact.) also might give you a lot of guidence.

After a few months, if you are still having problems, more extra measures may be necessary. This was the situation I had. After 6 months of a very strict gluten free diet, I was still having major problems. In my case, a part of the problem was the Prilosec I had been put on years ago for GERD. Try reading Green's chapter about when early measures fail. Six months later, a year after diagnosis, I am now starting to make some progress.

I had typical symptoms of celiac all my memorable life. Now at the age of 56, it will take years of healing before I will be back on my feet. [i was fired by the great state of Florida after nearly 25 year of distinguished service. That was just over a year ago.] My case was missed by some of the largest medical facilities in the Southeast, Univ of Alabama Birmingham, Univ of Miami, Univ of Florida Shands, Mayo Clinic Jacksonville, among others. Misdiagnosis ran from Migraine headache, GERD or acid reflux, Irratable bowel, Hepatitus, even pheochrocytoma. I am the poster child of what can happen with undiagnosed Celiac goes untreated.

One more bit of advice. When you go to the store, take a magnifying glass in addition to your Gluten free bible or lists of what to look out for, you know; on the list of ingredients.

I don't know how long your case was misdiagnosed. Whatever the case, we both have a long road ahead. Good luck. Let me know how you do.

Rock Hammer

YoloGx Rookie
YoloGx
Posted

Just wanted to add some herbal etc. remedies for inflammation. As I have often said, marshmallow root caps or powder--and/or slippery elm caps or boil it up. I have listed how elsewhere on the board. They both are very soothing and healing of inflammation in the gut.

Taking some enzymes with food (bromelain/papain and pancreatin) makes a huge difference--helps one digest food better plus it takes down some of the inflammation.

Taking systemic enzymes on an empty stomach will help reduce scar tissue as well as decrease inflammation; again bromelain/papain caps with either nattokinase or serrapeptidase. I discuss this more at length elsewhere in older posts--plus a variety of herbs that helps one's liver deal with the toxicity inevitable from leaky gut brought on by the damaged villi. Plus some good B vitamins, vitamin D, calcium, magnesium, omega 3's etc. However I just thought I would give you a quick heads up.

Just make sure whatever supplements you take that they are gluten free.

Bea

Welda Johnson Newbie
Welda Johnson
Posted

Hi,

I just wanted to offer a few words of encouragement, since I can feel how frustrated and sad you probably are at learning you have Celiac. I had Asthma from the age of 8 and never realized that it became worse after I ingested certain foods. That is until I started eliminating certain foods in my thirties and seeing that I would improve. I finally learned about six years ago that the disease is called Celiac and that I have it. Now at age 63 I have been able to get on a strict vegan diet, avoiding all grains, all milk & dairy, egg whites, yeast, and meat. At five feet tall I now weigh 100 pounds, and by using a breathing machine and minimal medication, I am breathing well, so all those years of suffering are but a dim memory, as is the weight control issue with which I had struggled for so long. Guess what? I sleep 8-10 hours a night and walk the treadmill each morning from 3-6 miles. Life is good.

It took a long time to be able to diagnose each and every food or additive which affected my life, but the effort was worth it, and along the way I was able to read a lot of books about healthy nutrition, so that was good too. I wish you well in your quest for good health. Keep on going on! Welda

kevsmom Contributor
kevsmom
Posted

Don't forget to check your medications and beauty products for gluten. Also, watch out for cross contamination. I hope you are feeling better soon. :)

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    • xxnonamexx
      1 Year Elimination Diet journey

      By xxnonamexx · Posted

      Interesting I read that toasted kasha groats have nutty flavor which I thought like oatmeal with banana and yogurt. Yes quinoa I have for dinner looking to switch oatmeal to buckwheat for breakfast. I have to look into amaranth 
    • Aretaeus Cappadocia
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      By Aretaeus Cappadocia · Posted

      I've never tried bananas or yogurt with kasha. It would probably work but in my mind I think of kasha as being on the savory side so I always add butter, peanut butter, or shredded cheddar cheese. Next time I make it I will try yogurt and banana to see for myself. Amaranth has a touch of sweet and I like to pair it with fruit. Quinoa is more neutral. I eat it plain, like rice, with chicken stock or other savory things, or with coconut milk. Since coconut milk works, I would think yogurt would work (with the quinoa). I went to the link you posted. I really don't know why they rinse the kasha. I've eaten it for decades and never rinsed it. Other than that, her recipe seems fine (that is, add the buckwheat with the water, rather than wait until the water is boiling). She does say something that I forgot: you want to get roasted/toasted buckwheat or you will need to toast it yourself. I've never tried buckwheat flakes. One potential issue with flakes is that there are more processing steps and as a rule of thumb, every processing step is another opportunity for cross-contamination. I have tried something that was a finer grind of the buckwheat than the whole/coarse and I didn't like it as much. But, maybe that was simply because it wasn't "normal" to me, I don't know.
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