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Thanks All Who Are Helping Me. This Week: A Mighty Wind!


Nancy Lake

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Nancy Lake Rookie

I was almost ready to visit a hospital. I got very week. Tiredness is one thing. Dragging yourself around is another. Also I was very larthargic and depressed. Well, I started reading about the Ketogenic Diet on line. I had been google-ing my symptoms. Wrong Diagnosis.com is one place that scares me. The more symptoms you add to their search engine the more they come up with you must have cancer.

I am laughing because never once did it think I might be Celiac. Back to Ketogenics. Muscle builders elimenate all carbs for about one week. They only eat Akins style..very little fruit. This forces the body into ketonics.

I realized that I was dropping enormous water weight...peeing hourly great volumes of urine. But after a while you loose electrolites. This causes extreem weakness. So I have been able to eat corn chips.

I discovered that fruit is very helpful with bringing the energy and ketones back into balance. Before I was eating hard boiled eggs, celery and peanut butter...but also had no appetite so not eating much at all.

There was never any pain with urination...just lots of it. Learning how to eat is very hard for me.

Women used to stay in bed for a week or more after having a baby...well not anymore. I say this because hospitals have learned that getting up and moving around is a must for recovery. Even after a cesarian 20 years ago...I only had one day of bed rest, then they forced me up.

I spent two days in bed, and that probably did a lot of not so good things too. I force myself now to walk and do things...it is very important.

I still have not returned to the gym. But I am going to very soon. Maybe not for a hour but at least some time.

Ok my mighty wind. The last few days, my side hurt, and then today...gas. Lots of gas. I feel better at the moment.

Each new day brings something else. It is amazing. I now feel like I have had surgery. I haven't but this return to normal life and taking things slow reminds me of a post surgery feeling.

My insides feel bruised and sore. My liver feels like it is swelling and then shifting or somthing. I have no idea if it is my liver, maybe pancreas, or large intestine, but it is in that area.

I was so swollen, that my ribs hurt now. Things are happening. I am just along for the ride. And it is Mr. Toad's Wild Ride at that.

Someone mentioned eating anti inflamatory foods. Could some one explain what those are? Not sure.

I just realized that Morningstar, fake meat, has glutten. Oops. I am becoming more of a lable reader.

In my last post, someone said that they were feeling fine prior to being glutten free. I think I can relate to that pretty well here.

One thing though, friends who see me now say I look so much better. They thought I looked hagged out and grayish before. Hummm.

Now I feel hagged out but look better...go figure.

Thanks for all your support. One day I hope to return the favor to someone new like me.

Nancy


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irish daveyboy Community Regular

Hi Nancy,

Just something very interesting for you to read.

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Open Original Shared Link

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Best Regards,

David

  • 4 weeks later...
Cath724 Apprentice

Hi Nancy- How long have you been gluten-free? I am one of the ones who was primarily asymptomatic prior to my diagnosis, and I can very much relate to the gluten "withdrawal." I felt terrible the first few days, then I leveled out but have not yet felt well and continue to have various symptoms-- I have many symptoms now, gluten-free, that most complain of prior to being gluten-free. And the sudden lactose intolerance I was warned of certainly came true, but I hear this can be just temporary so don't let it get you down just yet! I get light-headed and dizzy now, and just an overall unsettled feeling in my head, like pressure. I haven't tried giving up soy yet, which as we were both told may alleviate this.

Some of the material I've read say that as many as 70% of Celiac patients may have had the "silent," or asymptomatic, type, yet it often seems like we're the minority when we're looking for info. Also, I've read that the emotional part of going gluten-free can sometimes be tough for those who were asymptomatic because we can't relate to the "I feel like a new person now" stories after going gluten-free---rather, we feel worse than we ever have, on top of giving up our lifelong friend named Gluten:)

As you've already noted, the forum members here are a great resource and certainly help to alleviate many concerns/questions about our new diagnosis. Good luck, and hope you're feeling better soon!

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    • Stegosaurus
      i used to get cold sores frequently before I went gluten free.  Then I only got them when stressed.  Then I cured my gut dysbiosis, and haven't had one in 20 years.
    • Aretaeus Cappadocia
      To me, this bread is pretty special. The first time I tried adapting it I used a commercial gluten-free flour blend and it was good, but when I experimented using individual flours I tried the almond flour and it took it from good to special. I add walnuts or pecans to a lot of my desert bread recipes but I haven't tried nuts with this one. I would guess that adding either of them would result in the whole being less than the sum of the parts because the almond and other nut flavors would be competing. I wouldn't want to add almonds because of the texture. But you never know until you try. Have not tried cinnamon in this recipe. I imagine it would work. As I modified this recipe from the original, I reduced the sugar. The posted recipe is what I currently use. You are right that the pears bring a little sweetness to it.
    • Aretaeus Cappadocia
      It's kind of funny that before my celiac diagnosis I did a lot more "functional eating" where I just needed a meal and wasn't so worried about how interesting/delicious it was, just needed to eat something. After my diagnosis I've become a dedicated cook and I am very tuned into flavor and novelty. In answer to your question, I find the recipe very forgiving for trying add-ins. I've supplemented the greens with green onions, bell pepper (any color), celery leaves and stalks, and fresh parsley. Sometimes I throw in pepitas (pumpkin seeds), craisins, walnuts and/or sunflower seeds. One thing I tried that didn't really work was currants. I think that maybe it's because they are too small and too sweet. I haven't experimented with cheeses beyond the 2 in the recipe. I would guess that grated hard cheeses would work, medium hard cheeses (like swiss or cheddar) might work, and soft cheeses would not.
    • Harris
      That actually sounds really nice. Pear bread feels like one of those things that would be soft and a little sweet without being too heavy. I like the idea of using fruit like that instead of just relying on sugar. It probably makes it feel more fresh and homemade. Have you tried adding anything like cinnamon or nuts to it, or do you keep it simple?
    • Harris
      That actually sounds really good, I wouldn’t have thought to mix sorghum with kale but it makes sense. The roasted cherry tomatoes probably bring a nice bit of sweetness to balance everything out. I’ve been trying to find more simple gluten-free meals that don’t feel boring, and this feels like something you could make ahead and just keep eating through the week. Did you add anything else to it, like nuts or cheese, or keep it pretty simple?
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