Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Diagnosing 19 Month Old

betsyabailey

Recommended Posts

betsyabailey Rookie
betsyabailey
Posted

Hi there I'm new here! My son is 19 months now and has been gluten-free since 7 months. We noticed something was wrong @ 3 months and he had TMNT poo after I ate bread. So I went wheat free while I breast fed. Gave him barley cereal at 6 months and knew it was celiac not wheat allergy. My question is do I have to put him back on gluten for an actual diagnosis? He was such a chubby baby we didn't do lab work. He's getting Endomysial IgA and Gliadin IgA and G. Any help would be great thanks! Also a few questions about family history here. Do my husband or I have to have it? Do we have to carry a gene? Thanks.

Betsy

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aleshia Contributor
Aleshia
Posted
Hi there I'm new here! My son is 19 months now and has been gluten-free since 7 months. We noticed something was wrong @ 3 months and he had TMNT poo after I ate bread. So I went wheat free while I breast fed. Gave him barley cereal at 6 months and knew it was celiac not wheat allergy. My question is do I have to put him back on gluten for an actual diagnosis? He was such a chubby baby we didn't do lab work. He's getting Endomysial IgA and Gliadin IgA and G. Any help would be great thanks! Also a few questions about family history here. Do my husband or I have to have it? Do we have to carry a gene? Thanks.

Betsy

hi, I don't have all the answers but I do know that it is genetic so you or your husband would have passed it on. but that doesn't mean that you have the disease. it is a gene that can be triggered at any point in your life

Link to comment
Share on other sites
Worriedtodeath Enthusiast
Worriedtodeath
Posted

If he's been gluten free for several months, the test will come back negative. If he's been lite gluten or has been getting a little thru cc then it might show some antibodies but will probably still show neg. Your best bet is to continue on the path of gluten free. You will have to put him on a heavy gluten loaded diet for a minium of 3-6 months to even have a hope of getting a positive dx. If you want to do a challenge and get an official dx then wait until he's a little older and the gluten challenge won't mess him up as bad as it can a fast developing 19 month old. But it will take a long time on gluten to do enough damage to show up. We were on gluten for 96 days and didn't get a positive dx even though every dr we were seeing swore she was classic presenation for the disease and were confident enough to have us go on the diet as soon as the test was over. They just knew she would be positive but she came out negatvie.

Stacie

Link to comment
Share on other sites
betsyabailey Rookie
betsyabailey
  • Author
Posted

Thanks, bummer. I want a diagnosis for his preschool, he'll start in January and they won't enforce special diets without doc's note. I guess we'll look for new preschool.

Link to comment
Share on other sites
imsohungry Collaborator
imsohungry
Posted
Thanks, bummer. I want a diagnosis for his preschool, he'll start in January and they won't enforce special diets without doc's note. I guess we'll look for new preschool.

You're kidding me! :angry: So if a child has a peanut allergy...would they treat it the same? Probably not. All you have to do is say "nut allergy" and people go crazy trying to accommodate. Granted Celiac is not an "allergy," but the idea of a special diet being needed to maintain health is the same. Perhaps your doctor could write a note with a statement such as "probable celiac" or "possible celiac" while waiting for testing?

Actually, if he has responded so well to being gluten free, you may not want to put him through testing. At the very least, your pediatrician should be able to write "gluten intolerant: special diet necessary."

If you can, you may just want to find a new preschool.

Goodluck. hugs. -Julie :)

Link to comment
Share on other sites
betsyabailey Rookie
betsyabailey
  • Author
Posted
You're kidding me! :angry: So if a child has a peanut allergy...would they treat it the same? Probably not. All you have to do is say "nut allergy" and people go crazy trying to accommodate. Granted Celiac is not an "allergy," but the idea of a special diet being needed to maintain health is the same. Perhaps your doctor could write a note with a statement such as "probable celiac" or "possible celiac" while waiting for testing?

Actually, if he has responded so well to being gluten free, you may not want to put him through testing. At the very least, your pediatrician should be able to write "gluten intolerant: special diet necessary."

If you can, you may just want to find a new preschool.

Goodluck. hugs. -Julie :)

That's a great idea! Thanks!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,205
    • Most Online (within 30 mins)
      7,748
    Laurie Brizuela
    Newest Member
    Laurie Brizuela
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Constant low back, abdominal and pelvic pain!

      By ButWhatCanIEat · Posted

      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      Isolated DPG-Iga

      By trents · Posted

      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
    • knitty kitty
      Dehydration, dry skin and full body tingling when overheating

      By knitty kitty · Posted

      Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
    • Soleihey
      Lymph nodes

      By Soleihey · Posted

      Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
×
×
  • Create New...