Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Diagnosing 19 Month Old

betsyabailey

Recommended Posts

betsyabailey Rookie
betsyabailey
Posted

Hi there I'm new here! My son is 19 months now and has been gluten-free since 7 months. We noticed something was wrong @ 3 months and he had TMNT poo after I ate bread. So I went wheat free while I breast fed. Gave him barley cereal at 6 months and knew it was celiac not wheat allergy. My question is do I have to put him back on gluten for an actual diagnosis? He was such a chubby baby we didn't do lab work. He's getting Endomysial IgA and Gliadin IgA and G. Any help would be great thanks! Also a few questions about family history here. Do my husband or I have to have it? Do we have to carry a gene? Thanks.

Betsy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aleshia Contributor
Aleshia
Posted
Hi there I'm new here! My son is 19 months now and has been gluten-free since 7 months. We noticed something was wrong @ 3 months and he had TMNT poo after I ate bread. So I went wheat free while I breast fed. Gave him barley cereal at 6 months and knew it was celiac not wheat allergy. My question is do I have to put him back on gluten for an actual diagnosis? He was such a chubby baby we didn't do lab work. He's getting Endomysial IgA and Gliadin IgA and G. Any help would be great thanks! Also a few questions about family history here. Do my husband or I have to have it? Do we have to carry a gene? Thanks.

Betsy

hi, I don't have all the answers but I do know that it is genetic so you or your husband would have passed it on. but that doesn't mean that you have the disease. it is a gene that can be triggered at any point in your life

Worriedtodeath Enthusiast
Worriedtodeath
Posted

If he's been gluten free for several months, the test will come back negative. If he's been lite gluten or has been getting a little thru cc then it might show some antibodies but will probably still show neg. Your best bet is to continue on the path of gluten free. You will have to put him on a heavy gluten loaded diet for a minium of 3-6 months to even have a hope of getting a positive dx. If you want to do a challenge and get an official dx then wait until he's a little older and the gluten challenge won't mess him up as bad as it can a fast developing 19 month old. But it will take a long time on gluten to do enough damage to show up. We were on gluten for 96 days and didn't get a positive dx even though every dr we were seeing swore she was classic presenation for the disease and were confident enough to have us go on the diet as soon as the test was over. They just knew she would be positive but she came out negatvie.

Stacie

betsyabailey Rookie
betsyabailey
Posted
  • Author

Thanks, bummer. I want a diagnosis for his preschool, he'll start in January and they won't enforce special diets without doc's note. I guess we'll look for new preschool.

imsohungry Collaborator
imsohungry
Posted
Thanks, bummer. I want a diagnosis for his preschool, he'll start in January and they won't enforce special diets without doc's note. I guess we'll look for new preschool.

You're kidding me! :angry: So if a child has a peanut allergy...would they treat it the same? Probably not. All you have to do is say "nut allergy" and people go crazy trying to accommodate. Granted Celiac is not an "allergy," but the idea of a special diet being needed to maintain health is the same. Perhaps your doctor could write a note with a statement such as "probable celiac" or "possible celiac" while waiting for testing?

Actually, if he has responded so well to being gluten free, you may not want to put him through testing. At the very least, your pediatrician should be able to write "gluten intolerant: special diet necessary."

If you can, you may just want to find a new preschool.

Goodluck. hugs. -Julie :)

betsyabailey Rookie
betsyabailey
Posted
  • Author
You're kidding me! :angry: So if a child has a peanut allergy...would they treat it the same? Probably not. All you have to do is say "nut allergy" and people go crazy trying to accommodate. Granted Celiac is not an "allergy," but the idea of a special diet being needed to maintain health is the same. Perhaps your doctor could write a note with a statement such as "probable celiac" or "possible celiac" while waiting for testing?

Actually, if he has responded so well to being gluten free, you may not want to put him through testing. At the very least, your pediatrician should be able to write "gluten intolerant: special diet necessary."

If you can, you may just want to find a new preschool.

Goodluck. hugs. -Julie :)

That's a great idea! Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

    2. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      8

      Celiac flare years after diagnosis

      Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.
    3. trents
      - trents replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    5. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.  
    • trents
      Terrible Neurological Symptoms

      By trents · Posted

      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the hell. I've never seen a direct trigger such as this before that I can recall. The pain was the usual type I get from this problem - I suspect somehow the head movement was interrupting descending inhibition processes, causing the pain to leak through somehow.
    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped baby spinach or celery leaves to add a dash of green color to this red dish. Best eaten in first couple days because flavor tends to fade. Leftovers are still good, but not as vibrant. Ingredients 2 medium eggplants, partially peeled and cut into cubes (original recipe says 1 in, but I prefer 1/2 to 3/4 in) 2 tomatoes, peeled and crushed 4 garlic cloves, finely chopped or minced 1 tablespoon fresh flat-leaf parsley, chopped 1 tablespoon fresh cilantro, chopped ¼ cup extra virgin olive oil 2 tablespoons spicy harissa (I use Mina brand) 1 teaspoon cumin 1 teaspoon paprika ½ teaspoon black pepper 1 tablespoon apple cider vinegar or lemon juice 1 tablespoon tomato paste (optional) Salt to taste Preparation     • Heat olive oil in skillet or pot over medium heat. Add all ingredients and cook for 10 minutes, stirring occasionally. Cover and cook on low heat for an additional 20 minutes, stirring occasionally.       • Serve warm or cold as a side or with bread for dipping. Enjoy! Original recipe is here, if you want to see photos: mina.co/blogs/recipes/zaalouk-moroccan-eggplant-salad  
×
×
  • Create New...