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PaigesMom

How Long For Elevated Blood Levels Again?

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Does anyone know how long it would take for positive bloodwork to appear again AFTER going OFF OF a gluten-free diet? My daughter had + bloodwork, a questionable biopsy, and went gluten-free for 5 months - went off of the diet in November and had more bloodwork done in the beginning of February - TOTALLY NORMAL results, well within the normal range. The dr.s are saying she might not have been off of the diet long enough? I thought that bloodwork would come back positive fairly quickly, am I wrong on that? Thank you.

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Rule of thumb is that three months would be long enough, but everybody reacts differently. Nobody can say how long it takes any given person to be positive again.

Why is she doing this. Did some sort of symptoms improvew while she was gluten-free? If so and if she had positive blood tests before and if the biopsy was even borderline (many celiac disease experts now consider the "questionable" biopsy a positive when combined with positive bloodwork), you're talking pretty much 100 percent she has celiac disease.

richard

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My daughter is only 4, and she has Down syndrome. It is extremely difficult to explain to her why she has to eat certain types of food, and it came down to the point where she was not eating at all and she was losing weight. We stumbled upon this in the Down syndrome heath protocols - they recommended a screening at age 4 and that's what came back positive. She had no other 'symptoms' - the pediatrician did bloodwork and her IGg/Ttg came back at a 98, they did the biopsy and the biopsy was negative. They told me to keep her on the diet but again, she was becoming sick, so they told me to take her off of it, considering the negative biopsy and they would do more bloodwork. They did the Celiac Genetic Test which showed the genetic marker (however 30% of the general population also has it - it's just a marker) and this time her Ttg/IGg came back as a 10!! They were going to rebiopsy her IF the bloodwork came back positive, but with a negative first biopsy and negative second bloodwork, no symptoms, picked up by chance on a regular health screening, they are now saying that the first set of bloodwork was wrong. I have read over and over again here how bloodwork is not reliable.

I'm not sure what to believe, if she has it or not.

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You know, I was coming into the message board just to ask this question. I have put the gluten back into my diet for 18 days and I'm feeling SOOOO sick from it. My Dr. admits to not knowing much about this and is learning as we go. She doesn't think the blood test should be done till maybe 4-6 weeks after adding the gluten back in, but don't you think that if it's making me feel so sick that it would show up in the blood tests. I'm getting discouraged and about ready to give up and skip the tests altogether and go gluten-free without the diagnosis!! :blink:

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