Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Do I Get My Mother Tested?


jasonD2

Recommended Posts

jasonD2 Experienced

I'm convinced my mother has gluten problems but she refuses to get tested for Celiac and whenever i bring it up she yells at me and says "oh please enough already!" she has had IBS and diverticulosis for most of her life and during the past few years has had trouble loosing weight (she needs to drop 10-15 lbs), her teeth are very sensitive and always break (not sure if thats a symptom) and shes experiencing some hair loss (again, not sure if that's a result of gluten). all of her other blood tests have been ok and she goes for annual colonoscopies. her mother and grandmother both died from stomach cancer, but of course they also had poor diets and never went to Doctors.

Anyway, my mother has some Dr appointments coming up cause she wants to get things checked out and I really want her to at least get the celiac blood panel. Im at the point where I want to literally threaten to not to talk to her until she does this because nothing else will convince her. She has no idea how this is stressing me out and the fact that i cant even have a normal conversation with her about it is driving me nuts.

Any suggestions? I had another idea to actually email or call her gastroenterologist and explain all of my issues and how there might be a genetic correlation.

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

I think if you are that concerned and she is that uncooperative, then you should speak to her dr. Call and ask to speak to the nurse the day before her appointment. Say when your mother is scheduled for her appointment and in a very short sentence or two sum up your fears about her. Say you would like to speak to her dr about her condition and just give him a heads up about some family history and symptoms she may not be telling him about. You'll either get a call back from the dr later or the nurse may give you an e-mail so you can correspond. The nurse will probably tell you they cannot disclose her private info to you. Just reassure her that you do not need any info, you simply want to inform the dr about your mother's symptoms that could lead him to diagnose. The dr cannot probably diagnose her because she is not revealing the extent of her family history and her personal symptoms. ( This may not be true but if they think it is, they will probably talk to you,) Stress that you only want her to get well and you don't need to know the details on their end.

If your mother thinks the celiac panel is all the dr's idea, she will probably go along. But be prepared that the gastro may not be open to celiac, some are really on board and others less so. Know that if the dr won't go along, then you will have to back off. That's hard to do with a loved one but you may be in that spot.

I wish you good luck and keep us informed. Maybe there are other alternatives.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...