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Strange New Symptoms...any Ideas ?


NorthernElf

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NorthernElf Enthusiast

:(

Ok, puzzled by this one. I've been dealing with celiac for 5 years. I have some pretty bad reflux issues so I take Zantac 150s pretty regularly. In the last 2-3 months I've had "episodes" of weird GI symptoms. I get a lot of burning on the left and right sides of my stomach, I get cramps and burning in my abdomen, esp, on the right side. I have a hard time judging whether it's worse after eating or better...or worse 1/2 an hour after eating...or when I have nothing in my stomach. I get some nausea. Loose stools & one incidence of constipation (ugh, never had this before). No weight loss. I hate being hungry & nauseated. I don't feel "sick" like I would with a flu, just GI symptoms. Oh, and I've missed every other period (something I never do).

No gluten that I know of.

FWIW, my usual glutening symptoms include wicked headaches & sinus pain, cramping, reflux, and D...similar to what I'm experiencing but different - esp. because right now I don't feel like I want to lie down and die, LOL.

Anyway, I'm making a doctor's appointment tomorrow, hoping it doesn't take too long to get in. I have pain and cramping & nausea but I'm still functioning. Bending forward seems to irritate things too. I'm thinking gallbladder ? appendix ? what ???

Any help or insight would be appreciated - or questions I can hit my doc up with. TIA.


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ang1e0251 Contributor

Are you excluding any other foods from your diet? If not, could it be a new sensitivity say dairy or corn? Have you started any new supplements or the same ones but from a different company?

NorthernElf Enthusiast

At this point, no I'm not excluding anything else - limiting dairy a bit when things are already out of whack but that's it. Fluid milk and chocolate seem to bother me, hard cheese (cheddar) not so much. I haven't changed any of my supplements - I typically use Kirkland brand (no gluten), no new bottles.

I'll try again tomorrow to get a doc appointment - they weren't open today. I can't seem to link it to particular foods, although coffee seems to irritate it but even just having it in the am, I still have issues throughout the day. Ugh. It's the symptoms that are weird - I always get headaches with gluten and I don't have any and my stomach is really burning.

ang1e0251 Contributor

If you don't get any satisfaction from your dr, you could try a food journal with symptoms. It seems simplistic but it can really clarify a problem that isn't immediately obvious.

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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