Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac Disease & Ambitions


Ms. Skinny Chic

Recommended Posts

Ms. Skinny Chic Explorer

Celiac Disease has been the biggest struggle of my life.

I never had to go through a really big struggle at all in my life.

I have had to delay my educational goals and other ambitions...

I was always so sick. I was deathly ill ( I really used to love pasta& it was killing me)

I couldn't walk for sometime, I had daily fainting spells, suffered seizures from gluten and so much more..

It seems like the spectrum of medical specialist that I seen were endless.

That seems something that anyone who has a mystery illness shares...at least according to mystery diagnosis on TLC

My ambitions were replaced with seeking new medical professionals and running endless test.( SPinal taps, autoimmune disease test and more)

I am probaly one of the most tested people in history... LOL

Those events make your stronger, I think.

My health really used to suck, it is improving currently.

My medical labs look better, than they have iin a really long time.

Some people think that it is only a allergy or a small thing..

Celiac really affected me on so many levels...

It has been a long road for me... I think things will be back to normal in the near future.

I wonder how many of you have had to let go of certain goals???

Your health circumstances prevented you from achieving certain things...

It seems like sometimes you want to do so many things, but realistically your body isn't ready yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mrs. Smith Explorer

I know how you feel. I used to think celiac stole something from me, robbing me of my health. I am young and should never have been so mysteriously ill. Now I feel like it has actually given me a gift. I see that life is short and limiting at one time for everyone in some way. I thank god my kids are safe and my health will improve. I have also been tested a lot. I think the mental test was harder than the physical, lol. There are days when I hate having celiac, it is really a struggle. I am glad though that I am a better person because of it. I always thought of myself as very healthy and when I had medical problems I was so mad! The goal was to be happy and healthy and that was being taken from me so I had to take it back. We are lucky because celiac is beatable! I plan on beating it anyways! It takes lifelong commitment but I never want to feel that way again, so I will do it. It has definately been the biggest struggle of my life as well and has taught me alot. Im finally acheiving my goal which was health! :D

tarnalberry Community Regular

Really, it's just helped me be more conscious that everything is a choice. From avoiding the foods we need to, to the maintaining healthy interpersonal relationships, to having jobs that don't take more from us than they give. Sure, there may be sacrifice in our choices, but there's something we gain in all of them as well, and having that to think about over something as basic as food helped clarify that for me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...