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Doc In Pittsburgh Area


Sher B.

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Sher B. Newbie

Does anyone know of a good celiac doctor in Pittsburgh or surrounding areas. I currently have one that was recommended but he is not familiar with the neuro issues resulting from celiac. To make matters worse, the neuro I go to at UPMC is not familiar with celiac. I NEED help and welcome any recommendations. Will travel, will consider a naturopathic, just want relief from daily migraines, brainfog,fatigue etc. Thanks

Sher

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Brittany2 Apprentice
Does anyone know of a good celiac doctor in Pittsburgh or surrounding areas. I currently have one that was recommended but he is not familiar with the neuro issues resulting from celiac. To make matters worse, the neuro I go to at UPMC is not familiar with celiac. I NEED help and welcome any recommendations. Will travel, will consider a naturopathic, just want relief from daily migraines, brainfog,fatigue etc. Thanks

Sher

Hello, I just wanted to let you know there is a wonderful one near downtown Pittsburgh, who knows a great amount and is especially kind and understanding. His name is Dr. Colatrella and he's in the Pittsburgh Gastro Assiociation.

mamaw Community Regular

Welcome Pittsburgers.

Three Rivers Endo in Moon Twp is another practice. 412-262-1000. One of the nurses is celiac. This group puts on a seminar every year. Sorry we just did it on Oct 17th...

I'm the founder of a gluten-free ministry in Butler, Pa. We have a wonderful group . I have been mentoring for years so if I can help you just ask. I meet with newbies several times a week. Doctors often refer their patients to me after the dx's. We also have a mini coop for purchasing gluten-free foods.

I also do test marketing for new gluten-free products. I only buy & eat the best of the best ....I can give you a heads up on whats worth buying & whats not. mainstream products & so on.

We are having a gluten-free dining experience on NOv 8th at 3:30 at Ferrara's in Sharon, pa. Several from the moon Twp area are attending , some from the Canton, Ohio GIG & a few from other places . Would you like to join us? Here is the info:

Many have asked that we get together before the snow begins to fly. How about November 8th, (Sunday) at 3:30 sharp we can meet for a

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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