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Back Pain When Having A Digestive Flair-up?


Lynayah

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Lynayah Enthusiast
yep, upper right back moving under the shoulder blade. one of my conclusive signs that I've been glutened

maile: I know it is off topic, kindly forgive me everyone, but I just had to say that your puppy photo is beyond CUTE!


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Lynayah Enthusiast

Do any of you find that an Epsom Salt bath helps a bit?

purrcep4 Newbie
Oh wow this happens to ME! I was diagnosed in August and I have been gluten free until 2 days ago. My kids asked for cookies at the store. Normally I would make them myself but I said ok to the treat. Well of course the kids wanted one now. I put one in my mouth w/o thinking!! I had to RACE home to go to the bathroom, had back pain and shoulder pain for the remainder of the day. I NEVER thought that it could be from the gluten.

Wow!! I have been getting incredible right shoulder pain, and almost a paralysis of my arm. It's very debilitating. I also get low back pain which I have had for years and always thought it was due to deterioration of discs, according to many doctors and therapists. But I have learned recently since working on being gluten free that it is the gluten and maybe dairy.

Annie

purrcep4 Newbie
Does anyone have any tips for alleviating any of these symptoms after being glutened? I find that if I drink organic oj for the vitamin c with magnesium carbonate to help relax, take bifido pro biotics to get my bacteria growing and eat organic blueberries for the antioxidants, it calms the response. It doesn't make it go away, but it becomes more tolerable.

I get very debilitated from the gluten, with right shoulder pain and arm pain, my arm almost seems to go out of place, and just hang. The right low back pain is very intense, and I cannot stand up straight without incredible pain. The back of my head feels like it is caving in, and sometimes I have trouble getting words out. I can wake up in the night with all of this going on at once, along with intense cramping and tingling in my legs. I will be in a fetal position unable to straighten my legs, and grabbing my hair and pulling on it.

Thank you for this site. I finally feel that I am not alone.

Annie
Swimmr Contributor
Wow!! I have been getting incredible right shoulder pain, and almost a paralysis of my arm. It's very debilitating. I also get low back pain which I have had for years and always thought it was due to deterioration of discs, according to many doctors and therapists. But I have learned recently since working on being gluten free that it is the gluten and maybe dairy.

Annie

I am curious now to know if my fluctuating tingly-ness...or warm flushing feeling of my left arm may be a gluten reaction. Then slight dizziness/strange feeling occurs after that and by then I've taken an Ativan (which is Rx) and all is happy for me. Sometimes after this I will have what my doc thinks is a panic attack (if I don't pop the pill) which started happening last December unannounced and sudden. But by the time the dizziness sets in I've take my Rx Ativan...and then all is happy for me...literally. Seeing as how I've correlated my panic attacks and being glutened together on occasion, I wouldn't see why the tingly-ness WOULDN'T be from being glutened.

Sometimes it's in my right arm but mostly in my left. Sometimes I don't have a panic attack afterwards. It just continues to feel warm, then cool with clammy palm...then back warm again.

Doc didn't seem concerned that it's circulation or my heart...since there are no other symptoms that could be heart...unless it's my brain, but he isn't concerned about that either.

Why has everything got to be so complicated?

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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