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Northern Celiac

Leaky Gut Syndrome

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Hi everybody, I have hit a bit of a roadblock in my recovery and am looking for suggestions/answers. I was able to gain weight on a constant basis up to about weeks ago and now things have come to a halt. I spoke to a friend who is a researcher into celiac disease and he thinks I might be suffering from Leaky gut issues. The biggest thing is my appetite is not what it should be and the weight issue. He has suggested lgg food allergy testing.

Any thoughts?

Thanks in Advance

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Hi everybody, I have hit a bit of a roadblock in my recovery and am looking for suggestions/answers. I was able to gain weight on a constant basis up to about weeks ago and now things have come to a halt. I spoke to a friend who is a researcher into celiac disease and he thinks I might be suffering from Leaky gut issues. The biggest thing is my appetite is not what it should be and the weight issue. He has suggested lgg food allergy testing.

Any thoughts?

Thanks in Advance

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My understanding is that leaky gut is a normal response to celiac due to the cilia having been damaged (flattened and/or scarred). Undigested proteins then can easily go into the blood stream and the immune system attacks these proteins as if they were foreign invaders. Bummer, eh?

Depending on how long you have had celiac, the foods you are intolerant of can be more or less complex. The idea is that eventually you will be less intolerant as your intestines heal. Meanwhile however many of us have to figure out what is bothering us and avoid those items--as you are starting to do. Usually investigating it oneself and keeping a food diary with your responses (including taking your pulse at intervals) is as useful if not more so than taking tests--though maybe by now that has changed?? I found the best thing was to really limit my diet to simple foods like vegetables and chicken I prepared myself and then gradually add in one food at a time every two or three days or so while meanwhile keeping my food journal and body responses. Of course sometimes a food can be tolerated once or twice a week (rather than every days) or maybe by itself, which can make it more complicated.

For myself and other sensitives like me, I have found going off all grains to be very helpful. Thus I have a kind of combined Paleo and Specific Carbohydrate Diet with a few little changes here and there...I am unable to tolerate most fruit for instance. I hope eventually this will change. I believe my intolerance is due to candida overgrowth.

Meanwhile the most common allergen with celiac disease (apart from all gluten) is lactose. Thus the only milk product I eat is home made 24 hour yogurt...wherein all the lactose has been fermented away.

Am hoping you don't have to go to the extremes I have had to, but hope this info should be helpful in any case...

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I haven't heard of the 24-hr yogurt as pp mentioned before. I had to pretty much self-diagnose myself as doctors couldn't figure out what was wrong with me at all. I did alot of research online and I think I had the leaky gut along with becoming gluten-intolerant.......along with many other food groups. But the leaky gut was the first thing I had to tackle. Between what I was reading and what I did gain from my own dr., the bacteria that is tauted in yogurts is what I was needing. A leaky gut depletes those. Since I was also dairy-intolerant, yogurt just wasn't an option as was most of the supplements I found. But I did find an online supplement website that has alot of allergen-free options and ordere acidolphilus that was dairy-free. I took a double dose for 2 weeks and could really start to tell the difference. My digestive systems was digesting foods differently. While I was doing this I was also trying to eliminate those things I knew was causing problems. Glutens to begin with along with the dairies. Eventually I had to eliminate eggs, beans, rice, nuts, peas........alot of things, lol. But each time I eliminated something else, the stronger and better I was feeling. I truly believe healing your leaky gut it first, and foremost your first step. But you also need to try to eliminate your problem foods or you will end up just damaging what you are trying to fix. Best wishes!

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The specific carbohydrate diet thread here on celiac.com (led by AliB) has a recipe for making soured cabbage using acidophilus as a starter--as well as the 24 hour yogurt etc.. You might want to look it up.

Bea

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