Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

DucksnPucks

Do Symptoms Wax And Wain?

Recommended Posts

Hi!

I haven't been diagnosed, but we have very high suspicions that I am probably Celiac, as is my 3 year old son. Let's start with me:

39 year-old male that had a serious illness back in 2001. Doctors called it IBS, but it lasted a good four months. I had lots of D, stomach cramps, loss of appetite, lost about 45 pounds, and EXTREME fatigue. I should probably back up and say that I have selective IgA deficiency, which I know is more prone to autoimmune disorders. So after about four months I began to feel better, but I hadn't really changed my diet. I had just about every test in the book done, including a test for Celiac, all of which turned up negative.

Since the first major episode, I have had smaller episodes on and off for the past several years. The main symptoms are usually the fatigue mixed in with both D and C. The can last anywhere from a couple days to a couple weeks. Weight has remained relatively the same (I have gained most of the weight back after the initial illness). Sometimes the fatigue and D is down right debilitating.

My big question is this, do the symptoms wax and wain like this? I knwo its different for everyone, I just wonder if this is possible/usual for Celiac?

our three year old has been suffering through D for about the past two years, and he also suffers from eczema and nasal allergies as well (so does his older brother). His weight and height is good, though his appetite is not great at times. But for all intent and purposes he seems like a health young man.

Thank you all in advance for any information you can share1 Bless you all!

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


My own symptoms went from bad to worse back to bad and so forth for years. I had good days, and I had bad days. Once I had a firm diagnosis, and went gluten-free, my bad days became fewer and fewer until there were none.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

Share this post


Link to post
Share on other sites

Hi!

I haven't been diagnosed, but we have very high suspicions that I am probably Celiac, as is my 3 year old son. Let's start with me:

39 year-old male that had a serious illness back in 2001. Doctors called it IBS, but it lasted a good four months. I had lots of D, stomach cramps, loss of appetite, lost about 45 pounds, and EXTREME fatigue. I should probably back up and say that I have selective IgA deficiency, which I know is more prone to autoimmune disorders. So after about four months I began to feel better, but I hadn't really changed my diet. I had just about every test in the book done, including a test for Celiac, all of which turned up negative.

Since the first major episode, I have had smaller episodes on and off for the past several years. The main symptoms are usually the fatigue mixed in with both D and C. The can last anywhere from a couple days to a couple weeks. Weight has remained relatively the same (I have gained most of the weight back after the initial illness). Sometimes the fatigue and D is down right debilitating.

My big question is this, do the symptoms wax and wain like this? I knwo its different for everyone, I just wonder if this is possible/usual for Celiac?

our three year old has been suffering through D for about the past two years, and he also suffers from eczema and nasal allergies as well (so does his older brother). His weight and height is good, though his appetite is not great at times. But for all intent and purposes he seems like a health young man.

Thank you all in advance for any information you can share1 Bless you all!

Classic symptoms for both of you, and yes they come and go. I had good times and bad times as well (days/weeks/months), gradually more bad days as I was getting sicker over the years, then eventually when my celiac disease kicked into full gear after a serious illness I didn't have any more good days until I went gluten-free/CF/SF. I'm getting better and now I have more good days than bad days and I know what good days are! :)


Undiagnosed for 20 years since first symptoms.

March 2009 - Negative Blood work

April 24, 2009 - Gluten-free

April 29, 2009 - Notably positive response to gluten-free Diet.

May 2, 2009 Dairy Free

May 6, 2009, Soy Free

May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8

June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)

June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.

July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)

August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

Share this post


Link to post
Share on other sites

Yes many of us have had symptoms that come and go for a while before they become a daily struggle. I have been symptomatic since childhood but it wasn't until the last 10 years prediagnosis that they became daily and neverending.

I should add that if you are IGA deficient that can cause a false negative on the blood tests.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Add me to the waxing and waning my entire life list. I know in my heart that I've always had this condition, but at times it would seem to go away and I would go in denial and think that it truly had gone away.

After having babies, it came back and just did not go away. Not only the gastro issues, but I started having constant chronic sinus infections and allergy problems, even though my allergies are quite mild when tested.

I read that childhood celiac disease can go into periods of remission, and then surface again. Traumatic or stressful events, other illnesses like flu, and things like pregnancy for women can bring it on again if it's in remission.

I was always on the average to tall average size in height as a kid. Then all of a sudden in about 5th or 6th grade I just completely stopped growing. The doctors were puzzled but didn't follow it further. I read that childhood celiac can cause that stunted growth and end up in short stature for an adult. I ended up being 4'11" tall, and NOBODY on either side of my family is that short. When I got diagnosed recently, and then I read that it all made sense finally. And I cried my eyes out.


Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.

Ready to get well and get on with my life!

Share this post


Link to post
Share on other sites