Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Enterolab Clarification, Please


mrburns

Recommended Posts

mrburns Newbie

I've done a blood test to test for celiac disease. It came in negative.

I still am not convinced as to the validity of the results. Especially after reading how unrealiable they are in this forum.

I suspect I am not suffering from celiac disease, but rather 'just' gluten intolerance. So, a celiac test might be all for nothing anyway - no matter how accurate it might be.

I just have a question about the Enterolab test:

Will this detect if I am gluten intolerant in any way?

Or can I take this test - get it back negative - and still not be sure if I am intolerant or not?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newgfcali Rookie

You mentioned on another post that you've been gluten free for 4 years. If that's still the case, the Enterolab test will more than likely come back negative, even if you are gluten intolerant. They're looking for antibodies and if you're not eating gluten, you're not producing antibodies to it. The antibodies do stay in your body for a while after you stop eating gluten. I was gluten free for about 3 months when I took their test and it came back positive, but I don't think those little antibodies will live 4 years.

The same is true for the blood test. If you're not eating gluten and not getting cross-contaminated, you won't have any antibodies in your blood to detect.

You must suspect you have a problem with gluten if you went off of it for 4 years. Maybe the question is if you were sick before and feel better now, isn't that enough of a test for you to stay gluten free?

Whether you're full blown Celiac or "just" gluten intolerant, it really doesn't matter, as either can cause serious health problems and abstinence from gluten is the only "cure".

But, if you MUST have a positive test to convince yourself, then you'll have to do a gluten challenge before testing.

mrburns Newbie

You mentioned on another post that you've been gluten free for 4 years. If that's still the case, the Enterolab test will more than likely come back negative, even if you are gluten intolerant. They're looking for antibodies and if you're not eating gluten, you're not producing antibodies to it. The antibodies do stay in your body for a while after you stop eating gluten. I was gluten free for about 3 months when I took their test and it came back positive, but I don't think those little antibodies will live 4 years.

The same is true for the blood test. If you're not eating gluten and not getting cross-contaminated, you won't have any antibodies in your blood to detect.

You must suspect you have a problem with gluten if you went off of it for 4 years. Maybe the question is if you were sick before and feel better now, isn't that enough of a test for you to stay gluten free?

Whether you're full blown Celiac or "just" gluten intolerant, it really doesn't matter, as either can cause serious health problems and abstinence from gluten is the only "cure".

But, if you MUST have a positive test to convince yourself, then you'll have to do a gluten challenge before testing.

newgfcali,

I understand everything you're saying.

I am fully willing to eat gluten for a few months again, if I know that I can be sure of any test I might be doing it for.

I'm still looking for an answer to my original question:

Does the Enterolab test conclusively rule out/in any sort of gluten intorelance or not?

I know that celiac test I did does not. That test was more or less useless for me; not to mention a waste of money.

Jestgar Rising Star

An Enterolab test will detect if you are producing antibodies against particular proteins.

It is generally accepted that healthy people do not produce antibodies against either food, (anti gliadin) or their own proteins (anti tissue transglutaminase).

I do not doubt that Enterolab detects the presence or absence of these antibodies, but I do not know if anyone has tested how often these antibodies are found in people that have no other detectable response to gluten.

michelley65 Rookie

I am wondering the same thing.I also feel I am gluten sensitive and not celiac..I had a negative blood test once,and am waiting for the results of the next one.I dont really care what the results are anymore..Ive been gluten free for two weeks and feel fabulous!!!

nora-n Rookie

Go and check out the enterolab website, I think they also have some other tests that can be enlightening.

Soy and milk are examples of things that can make you just as sick as celiac, and there are other things that can be wrong, like microscopic colitis, crohns or colitis.

They also have the gene test for gluten intolerance genes.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    2. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    3. - Scott Adams replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

    4. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

    5. - trents replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Scott Adams
      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, that time period was a shingles pre-cursor, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
×
×
  • Create New...