Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

If You Could Only Use A Paragraph To Describe Celiac Disease


MRM

Recommended Posts

MRM Apprentice

i'm getting closer to an official diagnoses for my son. his GI doc is counting on his blood work to come back positive this week. i plan on doing any necessary testing to have a diagnoses. we'll also be testing my daughter and i may pursue a biopsy for me since my blood work came back negative. once that happens i will need to educate family on our new life style.

if you had to tell someone who knows nothing about celiac disease how it works and why you can't have gluten, what would you say?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bobbijo6681 Apprentice

i'm getting closer to an official diagnoses for my son. his GI doc is counting on his blood work to come back positive this week. i plan on doing any necessary testing to have a diagnoses. we'll also be testing my daughter and i may pursue a biopsy for me since my blood work came back negative. once that happens i will need to educate family on our new life style.

if you had to tell someone who knows nothing about celiac disease how it works and why you can't have gluten, what would you say?

Great Question!!

I would say this "Celiac is an Auto-Immune disease that effects my body's ability to digest gluten products effectively. Auto-Immune means that anytime I eat gluten products my body tries to fight itself and damages my small intestines in the process. The only way for me to feel better is to not eat or drink anything that contains gluten. Gluten can be found in all kinds of places, but comes from Wheat, Rye, Barley, and in some people oats. Even the smallest amount of one of these products is enough to set off an attack, so I must be VERY careful about what I eat."

That kinda sums it up in a quick answer, but that may lead to more questions from the person that you are talking to. If they ask for more details educate them, that is the best way for us to protect ourselves from CC or accidently glutening.

Good Luck with the tests and hopefully you will find your answer!

Link to comment
Share on other sites
Melanie1330 Newbie

i'm getting closer to an official diagnoses for my son. his GI doc is counting on his blood work to come back positive this week. i plan on doing any necessary testing to have a diagnoses. we'll also be testing my daughter and i may pursue a biopsy for me since my blood work came back negative. once that happens i will need to educate family on our new life style.

if you had to tell someone who knows nothing about celiac disease how it works and why you can't have gluten, what would you say?

Good question! I would say that it is an autoimmune disorder that is triggered by gluten, a protein found in wheat, barley, rye. When an individual with celiac disease ingests gluten, it triggers the immune system to attack, and damage the lining of the small intestine (or the villi). This damage prevents the person from obtaining the proper nutrients from food, and left undiagnosed, can lead to malnutrition, other autoimmune diseases, or cancer (just to name a few). celiac disease is very difficult to diagnose, largely because there are over 300 symptoms that can be related to the disease. One individual may have extreme rashes, another have stomach problems, another depression or anxiety, and yet others may have no symptoms at all. Even when symptoms are not present, celiac disease continues to damage the body each time gluten is ingested. The only cure for celiac disease is a strict gluten-free diet. Once on the diet, most patients are able to reverse the damage done to the small intestine (if caught early enough), and symptoms subside almost immediately. celiac disease is different from any other autoimmune disease because it is known what triggers it (gluten), and because once the source is removed, the body most often can reverse the damage and heal itself.

So will you give me a grade? It was a helpful question to think about because it is difficult to explain to others. Let us know how it goes for your son, yourself, and the rest of the family.

Link to comment
Share on other sites
tarnalberry Community Regular

My short description:

"Celiac is an autoimmune condition in which gluten causes my body to produce antibodies that attack my intestines. That makes me feel crappy for a week."

(For the "don't even suggest eating gluten to me" shock value, since I'm pregnant, I would add "According to recent research, those antibodies also attack the placenta, so I'm not about to consider risking anything with gluten.")

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,466
    • Most Online (within 30 mins)
      7,748

    CtoThaE
    Newest Member
    CtoThaE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hannah24
      I've not heard of the DNA test I will definitely look into that. And I did not know that the neuropathy was symptoms of vitamin deficiency. I have been trying to get on a good vitamin regimen. Thank you!  
    • Hannah24
      My GI Doctor took blood work and said my Iron levels were actually high. But they took my blood a couple weeks after my infusion so I'm thinking that's why they were showing so high, but they knew I had the infusions. The infusions did help greatly but I am also on an Iron pill that I can instantly notice if I have not taken it for a few days.  Yes, I have read up on that! Thank you so much! I sure that will be fun! Hahaha
    • trents
      @shadycharacter, did you mean to reply to another post about sourdough bread? The present thread isn't about that.
    • Moodiefoodie
      Thanks for your response. It seems to be only with gluten, illness, or vaccination. 
    • knitty kitty
      Welcome to the forum, @LimpToeTheTimeless Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle.  Remember to boost your absorption of vitamins and minerals needed to build muscle by eating a nutritionally dense diet and supplementing with essential vitamins and minerals, especially Thiamine B1, to counteract the malabsorption caused by Celiac Disease. Keep us posted on your progress! References: The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/ A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10542023/
×
×
  • Create New...