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momof4inla

I Would Love To Hear Your Stories...

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What were your symptoms before you went gluten free?

What was your abdominal pain/cramping like? Was it severe every day? Did it come and go? Were some times more severe than others?

Did you notice a reaction immediately after eating gluten or did it linger in your system before making itself known?

I would just like to read more about other people's experiences. :)

I will be starting a gluten free diet and if it helps I will put my 4 year old on it as well to try it on her... she complains of belly aches and has alternating diarrhea/constipation as well.

It's nice to have something to compare ourselves with.

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My only two symptoms about 8 years ago were unrelenting diarrhea (like getting up a few times a night and all day) and belly noises that sounded like wolverines were trying to fight their way out of my intestines! I had no pain at all. I only had the diarrhea for about 2 months before I saw a GI doc who treated me for giardia (parasites) while waiting for blood work. My blood work was so positive, my doc told me, that he didn't even recommend endoscopy. I went gluten free right then.

About a year later... I made beautiful (regular wheat) loaves of bread for a party (one of my fave things to do) and cut off a hunk, buttered it, and ATE it!! It was so danged good!! And guess what? NOTHING happened!! I was so excited and thought maybe I could "plan" a cheat from my gluten-free diet... maybe once a month. Well... the next time I tried it I was as sick as a dog... nausea, diahhrea. So... I've never eaten gluten intentionally since.

Middle daughter was diagnosed about 4 years later and youngest daughter was diagnosed this past fall. Oldest daughter is scarfing up all the gluten she can... ha. None of my siblings or any extended relatives have Celiac.


luvs2eat

Living in the beautiful Ozark mountains in Arkansas

positive blood tests and later, positive biopsy

diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day

Dairy free since July 2010 and NOT happy about it!!

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For a long time my upset tummy didn't have any pattern and could hit without warning at any time. Then for the last 5 years before I was diagnosed I would be sick every night, all night in addition after eating and in addition to all the other problems you see in my signature.

I was very hard to diagnose as I don't show up in blood work. After I was finally diagnosed my reactions from gluten were delayed reactions. I would have the neuro symptoms right away but the GI issues didn't become severe until 3 days after consumption. My allergist said this was common and one of the reasons we are sometimes hard to diagnose.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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As I havent been diagnosed with celiac(still waiting the results)I am without a doubt that I am gluten sensitive.My symptoms are bloating,gas and loose stools,and stomach noises that totally embarrass me because they are sooooo loud!Ive been having these symptoms for 5 or more years,along with a lactose intolerance.I get so bloated that I look pregnant!I also have muscle and jiont pain,and was just diagnosed with Fibromyalgia,dry skin,fatigue,and headaches(migraines)since I was 11...UGH!

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please keep them coming!

I was not sure if delayed reactions were typical!

Sometimes my cramping and pain and diarrhea are immediate (after I eat pasta) and other times it seems to come out of nowhere.

I googled celiac stories and read a few but this is better. For some reason I find this so interesting. A lot of times when I'm reading I'm thinking "me too!!!" :o

:lol:

So I just like to read about it. Thank you all.

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