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Questions Questions Questions

Leper Messiah

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Leper Messiah Apprentice
Leper Messiah
Posted

Hey guys, looking for a bit of help. Got a few questions which I'll try and be concise with but would appreciate your input:-

Could gluten be stored as fat and therefore hinder any recovery?

Vitamins/minerals - it appears there is a paradox here...for day-to-day living we need nutrition, for repairing ourselves over and above this we surely need a lot more but if our villi are binned then we're not getting enough for day-to-day living nevermind healing so are over the counter vitamins etc swallowed just money down the drain for celiacs? I know you can do B12 sublingually but can you do any others? What about vitamin injections, apart from the fact you are stabbing yourself, would injections be beneficial to recovery until the villi have healed sufficiently that you can obtain your bodies optimum nutrition entirely from food?

York Test - anyone done it and has helped anyone diagnose their celiac? I know they state it is not a reliable indicator of celiac but is it useful evidence for rubbish apathetic docs? Do a lot of people have other sensitivies on top of gluten? Perhaps this is where the yorktest may help, as an indicator at least.

For people recovering - how long until you got your energy back roughly?

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kareng Grand Master
kareng
Posted

Some nutrition is getting in - just not all or enough. There is usually some parts of the small intestine that are able to take in some nutrition. Thats why I am taking large doses of iron. Some of it has been getting in because it went way up. The idea is to make sure that the part that can digest vitamins has plenty going by to "grab". That said, iron is one that has to go through by itself (no food, coffee,etc 1 hour before & 2 hours after). I had much more energy about 3-4 weeks after I started taking big doses of iron. Hope that made sense.

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mushroom Proficient
mushroom
Posted

You Can have B12 injections if you can't do the sublinguals (I can't), and you really need a prescription strength Vitamin D if you are deficient. I am not personally familiar with how ferritin/iron is administered, but if you are low in that I believe the doctors can prescribe stronger doses that are more readily absorbed. Have you had any of your levels tested? I would strongly recommend a good B vitamin complex, and a Multi Mineral complex in addition to any tested deficiencies.

Know nothing about the York Test.

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      Waiting for urgent referral.

      By trents · Posted

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    • Moodiefoodie
      Joint swelling when ill even on gluten-free diet

      By Moodiefoodie · Posted

      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

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