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Possibly Odd Symptoms? Or Not?


Eliza82

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Eliza82 Apprentice

Did anyone ever have burning feeling face or puffy-feeling face and or lips from eating gluten?


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Mari Enthusiast

This seem more like an allergic reaction than the celiac autoimmune reaction unless you have dermatitis herpetaformis. I have an allergy to hot peppers, common in people with celiac disease, and anywhere the pepper oil gets on my skin it causes a burning sensation, itches and my lips swell. Even the small amount in catsup causes me to react. Pepper oil really sticks to the skin so I wash repeatedly with borax solution to get it off. Sometimes I have to scrub my face with a rough wash cloth or soft bristle brush to get the oil out of the tiny cracks and pores in my skin.

Hope this helps.

alissar Contributor

Yes! I used to feel very puffy all over (my face too) after eating meals. I thought it was from salt, but recently found out I have Celiac. After giving up gluten, I no longer get puffy after eating...even when I have meals high in salt. My eyes also puff up every morning. I do not feel any burning though, just puffiness and swelling. Since going gluten-free (I've only been gluten-free for a month or so now) the puffiness after meals is gone, and my puffy eyes in the morning are getting better. Hope this helps!

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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