Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Negative For Celiac, Positive For Genetic Markers


MGMG

Recommended Posts

MGMG Newbie

Hello

I am new to this site.

My brother was diagnosed with celiac disease in October of 2009.

I tested negative for celiac, but postive for the genetic markers.

I am deciding whether or not to embrace the celiac life style.

Any advice??

MGMG


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Heidi S. Rookie

Tough decision.

Your gene could be active and silent, active later in life, or never at all. I am not sure of your sex but you can pass it down to your children and not exposing them to gluten for the first year of their life, greatly helps the chance of activation.

A gluten free diet is tedious, expensive, and inconvenient, I do not wish it upon anyone, and NO one goes into it lightly. In my opinion, it is hard to follow if you don't have symptom, the symptoms are what keep you from cheating ;) It would be great to support your brother and understand his needs even if you choose not to follow the diet for yourself:)

Do you have any symptoms or medical problems?

Skylark Collaborator

I saw a talk by Dr. Markku M

ravenwoodglass Mentor

If your having symptoms then yes do give the diet a shot.

MGMG Newbie

Thank you for your quick response.

I am able to tolerate gluten-containing products. The only symptom I present with is abdominal bloating at times.I have tried to embrace the gluten-free diet and after a few days I have significantly less abdominal bloating. I also lost a few pounds while following the gluten-free diet!! It is extremely difficult to follow when eating in restaurants.

MGMG

WheatChef Apprentice

Thank you for your quick response.

I am able to tolerate gluten-containing products. The only symptom I present with is abdominal bloating at times.I have tried to embrace the gluten-free diet and after a few days I have significantly less abdominal bloating. I also lost a few pounds while following the gluten-free diet!! It is extremely difficult to follow when eating in restaurants.

MGMG

Certainly sounds like your body is reacting to the gluten. Since its normally a constant chronic exposure in a regular diet it can be hard to tell just all of what changes the gluten is causing in your body. I'm at the 2.5 month mark now and weekly notice a new thing that apparently was abnormal in me because it's now fixed but before I didn't even realize that it wasn't supposed to be that way (this week's discovery, not everyone has dermatographism and now neither do I!). You may be tolerating gluten less than you think. The bloating thing is definitely easy to notice however, one of the first changes that happened with me upon going gluten-free was losing 10 pounds and going down 2" in waist size.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      359

      Terrible Neurological Symptoms

    2. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      359

      Terrible Neurological Symptoms

    3. - akebog posted a topic in Gluten-Free Restaurants
      0

      Fusilli Pizzeria, Miller Place, NY

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    5. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,062
    • Most Online (within 30 mins)
      10,442

    AutomatedGlutenEjector
    Newest Member
    AutomatedGlutenEjector
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    • akebog
      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
×
×
  • Create New...