Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Waiting For Test Results.....

Mrsb2010

Recommended Posts

Mrsb2010 Newbie
Mrsb2010
Posted

In 1987, at age 18, doctors discovered a large (size of my fist) tumor in place of my thyroid. They did biopsies and opted to remove the thyroid completely. The diagnosis was Hoshimotos. Within a year I was having horrible stomach issues and went through multiple barium tests to be told I had a hyetal hernia and GERD. I am now in my early 40s and have been suffering from difficulty swallowing (especially at night), major stomach cramping, constipation (it can be five to six days), diarreha, major gas, itchy skin (especially after a warm shower), and depression. The despression I have attributed to mostly my being unemployed for so long. But now I am not so sure. A couple of weeks ago, the specialist I went to in regards to the digestive issues scheduled me for a colonoscopy and endoscopy. Biopsies on the endoscopy came back unremarkable. But the colonoscopy came back with damage. SO the doctor called for more definitvie bloodwork tests. The lab tech taking my blood directed me to this site. As I read all the symptoms and peoples issues, I am scared to think that this could finally be the correct diagnosis! Has anyone been living with these issues for nearly 22 years? And what do could it be if the blood tests come back negative? And what do I do about the thyroid medication I take? The brand I take has glucose aparently. Do they make gluten free thyroid medication?

Thanks for all the help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RESO Apprentice
RESO
Posted

Has anyone been living with these issues for nearly 22 years? And what do could it be if the blood tests come back negative? And what do I do about the thyroid medication I take? The brand I take has glucose aparently. Do they make gluten free thyroid medication?

Thanks for all the help.

Hi MrsB: I believe I can answer one of your questions. Glucose is a sugar, so it is safe for Celiacs or people with gluten intolerance.

Good luck with everything, hope they get it figured out quickly so you feel better soon.

Mrsb2010 Newbie
Mrsb2010
Posted
  • Author

Hi MrsB: I believe I can answer one of your questions. Glucose is a sugar, so it is safe for Celiacs or people with gluten intolerance.

Good luck with everything, hope they get it figured out quickly so you feel better soon.

I meant to say the brand of Thyroid I take has GLUTEN.....not glucose. Just wondering if any one else has found a thyroid medication without Gluten. THANKS!

dhiltonlittle Contributor
dhiltonlittle
Posted

I meant to say the brand of Thyroid I take has GLUTEN.....not glucose. Just wondering if any one else has found a thyroid medication without Gluten. THANKS!

Which brand are you taking that has gluten in it?

Skylark Collaborator
Skylark
Posted

Don't be scared. This is one of the best diseases you can have! It's 100% curable with diet. If you're gluten-sensitive, going off gluten totally changes your life for the better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized.
    2. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Does my iron loss sound like celiac to you?
    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it...
    4. ThomasA55
      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    5. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...