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Positive Blood Test


shamrock62081

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shamrock62081 Newbie

I have been having some stomach issues lately and my doctor decided to run some blood tests. One of them was for celiac disease. I just heard back today that the test was positive and that all my other tests were normal. Given what I had heard about celiac disease I was surprised by the positive result. The doctor said it wasn't a diagnosis, but maybe to try going gluten free and see if that makes me feel better.

It surprised me because I eat gluten all of the time and don't seem to have any isses. It's been a week since I had any issues and I've had cake, pizza, white bread, beer, corn flakes, granola bars, cereal (7 whole grains) and haven't had any problems. I would htink that especially given that I eat a cereal for breakfast every morning with all sorts of whole grains, and thus gluten, that I would feel bad, but I'm fine eathing that. When my symptoms do occur, they come on about an hour after eating and last for about 4-5 hours before going away.

Couple of questions for those experienced with celiac disease...

1 - how long after going gluten free should I see a result if i truely have celiac disease?

2 - does eating gluten always make you feel bad or can it be sporadic?

3 - any other words of wisdom?

I'm starting a food journal to see what is triggering my symptoms because I'm just not convinced that it's the gluten. Maybe you guys can convince me otherwise.


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If you're eating gluten all the time and you have celiac disease, your gut is so damaged from autoimmunity that you won't necessarily notice immediate effects from eating any particular meal. Celiac stomach trouble can definitely be intermittent. Some people notice a difference after a few days, others have problems off and on for a couple months before things settle down.

Did your doctor tell you which blood test came back positive? If it was anti-endomysial antibodies, you're either celiac or on your way there (it's a process), and you need to be off wheat permanently, symptoms or not. Otherwise you risk osteoporosis, neurological damage, autoimmune thyroid disease, and some rare intestinal cancers.

ravenwoodglass Mentor

If you're eating gluten all the time and you have celiac disease, your gut is so damaged from autoimmunity that you won't necessarily notice immediate effects from eating any particular meal. Celiac stomach trouble can definitely be intermittent. Some people notice a difference after a few days, others have problems off and on for a couple months before things settle down.

Did your doctor tell you which blood test came back positive? If it was anti-endomysial antibodies, you're either celiac or on your way there (it's a process), and you need to be off wheat permanently, symptoms or not. Otherwise you risk osteoporosis, neurological damage, autoimmune thyroid disease, and some rare intestinal cancers.

I agree completely with this. For years my gut symptoms were on and off before they became a daily and nightly issue but there was a lot of other stuff going on that I didn't know was celiac related until they resolved on the diet. Those included mood issues, bone and joint pain that eventually developed into arthritis that caused permanent joint deformities, migraines, nerve conduction issues to the point where I could eventually barely walk, osteopenia that eventually turned into osteoporosis, anemia, skin problems, liver and kidney damage. You risk a lot by not listening to your doctor.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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