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dezzy87

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dezzy87 Newbie

Does this sound like Celiac Disease?

For the past couple months I have been having stomach problems, bloating, diarrhea and gas. This all started right after I moved out on my own for the first time so I just assumed it was from not eating right and stress but when it didnt go away I started to ask questions. I noticed that it seemed to the pretty bad after I drank milk or had any dairy so I cut the dairy out of my diet and assumed that I have become lactose intolerant. Though it helped a for a little while I started to notice that I had all the same symptoms after eating pastas, breads, cereal, basically carbs. The only time I really feel 100% is in the mornings when I havent eaten anything for several hours. On top of those symptoms, I have also been feeling tired and no matter how much sleep I would get the night before I would still wake up exhausted. So I started doing some research online, and those symptoms led me to pages on celiace disease. After reading all of these I started to wonder but before I go to the doctor with this I would like to hear some other opinions. Could I have developed Celiac Disease?


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Skylark Collaborator

Yes, it could be celiac disease. The exhaustion was a huge issue for me along with the GI symptoms and it got much better after I had been gluten-free for a while. Some celiacs are lactose intolerant too, since lactase is made at the tips of the villi, which is where the damage happens. Other people are sensitive to the casein.

You have to eat "normal" amounts of wheat to be tested, so be sure to get all that done before you go off gluten.

Mari Enthusiast

Celiac Disease is only one of the problems your Dr could test for. You may have developed an intestinal candida overgrowth or an overgrowth of other intestinal bacteria when you eat gluten or other foods high in carbohydrates. It is best to find out more about your problems. In about 30% of people with celiac disease the blood tests come back negative so keep that in mind now that you know that gluten causes more problems. Look at Enterolab.com - they do fecal testing for the antibodies which are more sensitive than the blood tests.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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