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How Long Until Challenge?


Heathers-garden

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Heathers-garden Newbie

I left another post about questions I had regarding my symptoms. I still am off the gluten(being very careful) and dairy. For me it is very disheartening though and I wonder if anything is really helping. My joints actually are worse(just started my period...it does get worse with this) and I have been off gluten for about three weeks. Am I nuts for even trying this? I just want to eat a big greasy cheesy burger with a bun, but don't know if I am just being impatient. I don't get better like bam! does that mean this is a useless experiment? I guess I don't mean challenge as in getting the blood test, I mean reintroduce gluten. I don't think I would see a difference as my joints still hurt. boo.


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GlutenFreeManna Rising Star

I left another post about questions I had regarding my symptoms. I still am off the gluten(being very careful) and dairy. For me it is very disheartening though and I wonder if anything is really helping. My joints actually are worse(just started my period...it does get worse with this) and I have been off gluten for about three weeks. Am I nuts for even trying this? I just want to eat a big greasy cheesy burger with a bun, but don't know if I am just being impatient. I don't get better like bam! does that mean this is a useless experiment? I guess I don't mean challenge as in getting the blood test, I mean reintroduce gluten. I don't think I would see a difference as my joints still hurt. boo.

What are you typically eating? My joints hurt more when I eat anything with soy. And if you are eating a lot of processed gluten-free foods they often contain soy. Cross-contamination is another problem with gluten free substitutes. If you are super sensitive you could still be reacting to trace amounts of gluten.

Skylark Collaborator

It can take a couple months for non-GI symptoms to go away. I wouldn't declare gluten-free a flop until you've been strict for at least two months and had no improvement at all.

To be honest, I saw your other post and wasn't sure about gluten intolerance. I'm not a doctor, so I don't really have much to offer but I do hope you get things sorted out.

Heathers-garden Newbie

I figured I needed to try it longer. Autoimmune things are frustrating because you are always seeing similarities with other conditions and never know what is going on. Do you think my symptoms in the other post don't sound like gluten intolerance. I had read that some people don't have GI issues, and I definitely have had some sort of ataxia. Thanks for your time.

Marz Enthusiast

The nightshade family is strongly associated with arthritis/joint pain. Try cutting out the family for a few weeks and see if it helps? Nightshades = potato, green and red pepper, tomato, eggplant and a few more. Have rice, sweet potato or yams instead of potato.

I also second the soy suggestion, it's nasty stuff! (my humble opinion :) )

You could also look into lectins, I've been researching this a lot the past few days, and it seems to be the culprit for a lot of problems.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
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      Does my iron loss sound like celiac to you?
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      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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