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Joint Pain And Total Knee Surgery Part Of Celiac Disease?

sherrylynn

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sherrylynn Contributor
sherrylynn
Posted

I have not been diagnosed yet but wondered. I have had joint pain for a long time. and 2 years ago have had to have total knee replacement surgery for both knees. I am 45 now and when I was 38 was told from a doctor that I had the knees of a 70 y/o. Was going to have the surgery then but found out 4 days before surgery I was pregnant.

Has anyone else had Joint pain then had to have surgery on joints at a young age?

I also have had D since I was 12 and have just been Diagnosed with IBS and have had lactose intolerance since I was 12.

Still wondering if what I have is Celiac, or do I just have IBS and arthitis and it is all a coincidence.

Thank you

Sherry Lynn

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ravenwoodglass Mentor
ravenwoodglass
Posted

In my case the arthritis and IBS along with a lot of other stuff was connected. My arthritis has been in total remission now since a few months after diagnosis. After you are done with testing do give the diet a good strict try for a few months even if the results are negative. My IBS symptoms resolved fairly quickly but the arthritis took a bit longer to resolve.

Marz Enthusiast
Marz
Posted

Agreed with Ravenwood :) Get tested first, and then immediately go gluten-free anyway for a few weeks to see if it clears up symptoms even if tests come back negative.

I get very sore knees (they feel "unoiled"/creaky) when I get accidently glutened. I've also noticed my back pain coming back the last week or so when I was glutened, so wondering if that's related as well...

sherrylynn Contributor
sherrylynn
Posted
  • Author

Agreed with Ravenwood :) Get tested first, and then immediately go gluten-free anyway for a few weeks to see if it clears up symptoms even if tests come back negative.

I get very sore knees (they feel "unoiled"/creaky) when I get accidently glutened. I've also noticed my back pain coming back the last week or so when I was glutened, so wondering if that's related as well...

Thank you both for answering my question. I am very anxous about seeing the doctor, I hope he can help me. I am soooo tired of having a sore and painful tummy.

I am also having alot of pain in my arms and legs. stabbing type pain and an achy pain that I have had for years and years. I will let you know what he says.

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    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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