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Are These Symptoms?


anbeard

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anbeard Newbie

ok I don't officially have a diagnosis of celiac's but was told what I'm experiencing could be it:

I have two rashes, well one is more like a place that frequently itches but shows no topical signs, ie redness, flaky skin, etc. it is on my hand and the real rash is on my inner thigh just above the knee. itches like crazy!!!

I am lactose intolerant, have problems with beef (don't know how to explain, pain in chest? kind of?). I feel boated and gaseous after breads or beer. this makes me think celiac's, but from my reading I see weightloss and malnutrition is a part of the disease. buuuuut, I'm overweight and don't necessarily feel malnourished... so... is it still possible to have it without weightloss and malnutrition?

I plan on going to Dr soon, but don't want to seem like a paranoid hypochondriac or something...

thanks!


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Dixiebell Contributor

If you want testing make sure you keep eating gluten foods. Quite a few people I have seen on here are not underweight. My bloodwork was negative but I feel so much better not eating gluten. I am overweight and been fighting it for years. Make sure you get your vitamin levels checked and then you can see if you are absorbing nutrients or not. I went gluten-free because of my son having stomach problems, unexplained rashes and blisters, behavior issues and he would complain of tingling in his legs and my family history with so many stomach, gall bladder, cancer, heart failure, short stature, depression, thyriod, allergies and I am sure I am forgetting something. I also had severe fatigue and would suffer sometimes where my stomach would wake me and I would be in horrible bad pain and I would sit on the pot and couldn't go. This has not happened again. The last time I saw my Dr. she said I needed to see a mental healthcare specialist. You might want to call the Dr. office and see if they know about celiac first. Arm youself with as much info as you can. If your testing comes back negative try gluten-free and see if it helps you.

anbeard Newbie

ok thanks for the tip on keeping eating gluten if I want a test. I'm assuming that the test results will give a false neg or something? I guess it sounds like its worth a shot at testing... ill post my results (may be a while!)

Skylark Collaborator

ok thanks for the tip on keeping eating gluten if I want a test. I'm assuming that the test results will give a false neg or something? I guess it sounds like its worth a shot at testing... ill post my results (may be a while!)

If you're celiac, all the antibodies go away on the gluten-free diet. So yes, you'll get a false negative.

GlutenFreeManna Rising Star

Yes, you can have celiac or gluten intolerance even if you are overweight. Have the doctor check your thyroid levels even if you don't have symptoms of thyroid disease yet. The weight gain alone could be a symptom and many people that have celiac also have hypothyroidism. You may have to push harder to get a test if your doctor is not really familiar with celiac. Try to find a doctor that knows about it if you can. And as stated above, stay on gluten until all your testing is done. Then give the diet a strict trial period even if the tests come back negative. Since the tests are not 100% accurate you could still be sensitive to gluten and test negative.

GlutenFreeManna Rising Star

BTW, if you think the rash is DH, you can go to a dermatologist and have them biopsy the skin next to the rash. If it comes back positive for DH then you have celiac.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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