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Dealing With Frequent Bathroom Urges


Silverfyre

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Silverfyre Rookie

Hello all,

I've been a diagnosed celiac for five years now and I've been battling the same problem day in and day out since then. I'm very careful with my diet, I only buy gluten free foods and take painstaking measures with what foods I cook with. My wife has gone gluten free with me as well (God bless her for it!). But, I'm beginning to wonder if there is not something I'm missing or if I suffer from some other bowel related problem. See, I will eat a meal and then, twenty minutes later, I'm instantly in the bathroom, having to do the dirty deed. I've been on Imodium to try and regulate this but it doesn't work half as much as it used to. I chalk that up to being on it long term and have recently come off it and am trying probiotics (Digestive Advantage for IBS). Still, nothing. I'll have one good day and a bunch of bad days. I have been trying to cut lactose and casein completely out of my diet as well but it hasn't been helping much. I've been tested for other allergies twice now and nothing has come up. Does any one have any ideas or perhaps suffer the same? I'm running out of hope here and with starting a new job soon, I'm quite fearful that this is going to prevent me from working...

Thanks in advance.


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captaincrab55 Collaborator

I also battled some issues like you.. I did find out the Naturally Gluten Free Sour Cream wasn't.. My wife and daughter started reading labels and calling. The last thing we thought was the culprit.. That Naturally Gluten Free Sour Cream carried a warning that it may contain traces of wheat, of course it was in small print.. We were sure that we read the label in the past and that warning wasn't there... Removed that produt from my diet and life is much better.. Still struggling with some other product here & there, but life is getting better... Just seems to take the DH a little longer to settle down after an oops...

lamegirl Newbie

My dad has had similar issues, ever since he had his gallbladder out. He also has liver issues, stemming from too much iron in his blood.

He hasn't found the reason either, but we suspect it might have something to do with diary- he won't go off of it though, instead defaulting for high doses of cholistid (sp?). The medication he uses is supposed to help reduce overall cholesterol levels, and flush them out of your system, and he finds it helps his D as well; but he hasn't been able to get off of that either - he might be on that for life?

ravenwoodglass Mentor

You mentioned being tested for other allergies but have you been tested for other intolerances or tried eliminating things that are common for us to be intolerant to? Soy, eggs and casien would be the most common ones. If you don't want to do an elimination of them you could get tested for them through Enterolab. I didn't realize the continued issues I was having were from soy until I got tested and then eliminated it. That took care of a lot of the issues.

This is going to sound like a strange suggestion but you may want to see if a referral to a physical therapist who deals with these issues might help. The first visit I had I was very apprehensive and embarrassed as I had almost no control at all at that time but the therapist helped me a great deal.

It is a hard thing to deal with and I hope you get some resolution soon.

Cheryl-C Enthusiast

I'm by no means an expert here, but I'll throw in my two cents anyway. What you're experiencing may not be related to allergies/intolerances at all. Have you talked with your doctor about having a colonoscopy? There could be something else, unrelated, going on in your bowel that should be looked after.

Hope you feel better soon!

Silverfyre Rookie

Thanks for all the support and ideas, guys. I'm going, once my insurance kicks in, get myself tested for casein, soy, and other allergies. I'm going to try eliminating casein first and see how that goes. Thanks again!

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      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
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