Update And A Question

[Zalie]

I posted here a little while ago with my 3 year old daughter's symptoms, asking if they sounded familiar to anyone here and what I should do if her blood results came up negative. She had her blood tests 2 weeks ago, and today we got a call from the hospital saying they'd come back strongly positive! My daughter is already having a hernia operation so the two surgeons have agreed a date and brought the operation forward to the first date they could both do (mid-Oct) so she can have the endo and biopsies done at the same time.

Over here, she is entitled to gluten free foods on prescription, but only if she's confirmed as celiac by biopsy. My question is, if she has strongly positive bloods, is there a chance she could still have a negative biopsy? I've read that there can be patchy damage, so it can be missed and give a false negative result. Is that likely with a strong positive blood test? If they do get negative biopsies, would that mean they'd say she doesn't have celiac? I'm confused about what a strong positive bloods and negative biopsy would mean, and whether she could still qualify for prescribed foods with a negative biopsy.

Positive bloods + positive biopsy = definite celiac.

Positive bloods + negative biopsy = ...?

Thank you again for any and all help!

Zalie.

[Zalie]

Just updating this in case anyone comes along searching for a similar thing at a later date.

My daughter's blood results were very strongly positive, and I asked the paediatrician if you can have positive bloods and negative biopsy. He said with strongly positive blood results he's never seen a subsequent biopsy be negative. (And he was right with my daughter, because her biopsy was 'strongly positive' too).

[Jestgar]

Thanks for updating. A lot of people do read the threads without answering so I'm really glad that you shared your information with us.

And also that your daughter can start her road to recovery.