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I Need An Expert Opinion...


msb11

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msb11 Newbie

Recently my oldest daughter (6 years old) and I have been tested with negative results...she has had constipation leading to vomiting issues since she was 1.5. She also has serious anxiety issues (which I have ready can be caused by Celiacs). I have extreme fatigue, easy bruising, hair loss (actually going to a dermatologist at the mayo clinic next week because my doctors can not figure out what is causing this), moderate GI issues, swelling of hands and feet, and yesterday I went to a holistic doctor and she said I have low blood sugar, am insulin resistant, and have zero mineral absorption. Also yesterday, my youngest daughter (4 years old), who has been constipated since Friday began having blood in her stool, what little was coming out. Took her immediately to the pediatrician who ordered a belly x-ray that showed no impaction...also, had her tested yesterday, but will have to wait for results.

I have been eating gluten free for a little over two weeks now and have noticed that I have way more energy...do you think we are gluten intolerant? Is there a test other than the diet?

Here are my blood test results...I can't make sense of them:

Gliadin AB, IgA: 4

Serum IgA: 180

TTG AB, IgA: <3

Thank you for any insight at all.

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Dixiebell Contributor

On your tests there should be a column with the ranges listed. I think different labs have different ranges.

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BRUMI1968 Collaborator

When I was a little girl, I often had blood in my stool caused by fissures. These are tiny cracks in the sphincter or the skin down there, whatever it literally is. This is caused by constant constipation. Some things you can do BESIDES cure the constipation, which would obviously be the best thing, is not to use harsh soaps on the bottom. These dry out the skin further and make fissures more common.

Also, more and more I am really doubting these celiac tests. I know I'm talking out of school here, but I have met so many people who not only have symptoms, but who have gotten substantially better going gluten free, but still test out negative. The tests are not as good as your experience on a gluten free diet.

I would definitely try your daughter out on a gluten-free and dairy free diet and see if her Constipation and Vomiting get better. It can really change her life if she does not have to grow up with those things, the way I did. Take good care.

Sherri

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ravenwoodglass Mentor

Also, more and more I am really doubting these celiac tests. I know I'm talking out of school here, but I have met so many people who not only have symptoms, but who have gotten substantially better going gluten free, but still test out negative. The tests are not as good as your experience on a gluten free diet.

I would definitely try your daughter out on a gluten-free and dairy free diet and see if her Constipation and Vomiting get better. It can really change her life if she does not have to grow up with those things, the way I did. Take good care.

Sherri

This can not be stressed enough. After all testing is done do get her on the diet along with yourself.

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