Recent Biospys Waitin For Results Can You Help Find A Missing Link?

[star25]

thought id put up here instead of ppl wasting there time reading for nothing

has anyone with celiacs suffered recurrent or recurring uti's before dianoses???

hi new to this site but seemed like the best place to start since im being tested

for celiacs somehow i dont think ive got it as i dont think anyone in the family

has it plus my blood tested negative however had upper gastroscopy this week

which showed evidence of multi erosions (none ulcers) of the 1st and 2nd part

of intestines. i want to hear from celiacs suffers to see if they can tell me

if the can link a certain thing that you may have suffered before getting dianosed.

let me start of with my usual symptoms

weight gain unexpected

headaches

joint pain

constant abodomal pain from sharp.burning, etc

constipation yet stools are wet sometimes loose and half the time either float

or stick to one side.

cant eat much without feeling horrible

occasionally nausea sick feeling not all the time.

gas both top/bottom

chills/fevers on/off

very bad sleeper :-(

bloated distended tummy

ok so all the usual symptoms that are ruining my life and heres the biggie

this all started over a kidney infection once that went all my stomach/abdo pain

started was healthly 25 female at healthy weight since this started ive just had uti/kidney problems one after another always showing the same things high white cells protien etc in urine.......tried everything even seen uroliesgt which was no

help.

so basically wondering if any with celiacs may have suffered from water work

problems????????????

every blood test and urine is always way abnormal however had celiac blood test

that was neg had thyroid etc also had ct scan showed swallon lympth nodes

and then just had upper gastroscopy that showed the multi erosions but there

not ulcer type so they took biospsys for celiac and somthing else....

so waiting for results i really just want to no if anyone has same problem and if theres a link.........

ps i dont get any symptoms of uti till it reaches kidneys which is a pain except peeing alot.....

any help or advice would be great

[mushroom]

I am the queen of UTI's. My mother also had them constantly, both my sisters (one eats gluten free, the other should ) also have them. I don't get them just out of the blue any more - I only get them now when I take an antibiotic, then have to take another antibiotic to get rid of the UTI My gluten free sister doesn't get them any more, my gluten eating sister still gets them all the time - I have her on cranberry tablets now. For me there is a definite link. I also have kidney problems but their etiology is clouded by a medicaiton I took which did damage, so hard to link to gluten consumption.

[star25]

hi thanks for the reply,ive been searching online and seems

it goes both ways some say theres a link some say theres not

hopefully will find out soon enough ive never had a uti/kidney infection

in my life up until this year and now they wont go away

hopefully the biopsys will give me answers i have loads of gluten

as i thought well bloods were negative so aint got that and carried on

find pains are worse when i eat pastrys and stuff, tried nearly

every antibiotic and remedies so now having deeper urine tests done

if my biopsy comes back as celiacs then id say theres deff a link

thanks

[Emilushka]

To the best of my knowledge, there's no known link between Celiac and urinary tract problems. But that doesn't mean you can't have both!

[GFinDC]

Hi Star25,

Welcome to the site! I have a sister who is most likely celiac or NCGI (non-celiac gluten intolerant). She gets UTI's fairly often. She gets better when she sticks to the gluten-free diet, but is not a always doing that. Hmmm.

Celiac can cause malabsorption of nutrients and that can lead to wide-ranging negative affects in the body. You will see people posting on here with all kinds of different symptoms and conditions.

You have many symptoms that sound like they could be from celiac. You may not know this, but the tests for celiac are not 100% perfect. You can test negative for celiac but still have it. This includes the blood antibody tests and the endoscopy tests. That's why it is often recommended here that people who test negative go ahead and do the gluten-free diet for 3 to 6 months as a trial. If you start feeling better or your symptoms reduce, then it is most likely due to the change in diet. You can also do a challenge after this gluten-free period by then eating gluten for a couple weeks to see if your symptoms start to return.