Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Look, Bread, It's Been Nice, But...


Chiana

Recommended Posts

Chiana Apprentice

I'm 22, and I've had problems with depression since I was a small child. I have been on various antidepressants since I was 15 years old. For a long time I felt like I'd come to terms with it, but in the last few years I have been so exhausted that I can barely function. I sleep for 16 hours at a time some days, and can't focus on anything for more than a few moments.

About two years ago, my doctor ran some tests. My thyroid was fine, and I wasn't anemic (this is still a surprise), but my b12 levels were low. I began to get b12 shots twice a month, but the cause of the deficiency was never investigated.

Last year, I got a new doctor. She did every test she could think of, which included tests for kidney function, thyroid function, b12, D, and various other issues. Everything looked ok. Being the new family physician, she knew about my father's recent (successful) surgery and assumed the stress had just aggravated my depression. She did have one misgiving: the glands on my throat were swollen, but I wasn't sick. Strange. She asked me to come back a week or two later, but I just assumed I was coming down with a cold and disregarded it.

Now that I'm doing my own research, I realize that 'auto-immune' was in the back of her mind. Looking at Celiac disease, it kind of makes sense, and looking back at my own life certain things seem more important:

I had terrible, recurrent diarrhea as a child that I eventually outgrew.

I got salmonella at 19, and it almost killed me. I had diarrhea every five minutes for 11 days.

I suffered from cystic acne through most of my life, starting at age 10. My complexion has never been good.

I have clotting problems. I bruise for no good reason, and then the bruises don't heal. My periods will sometimes run for over a month.

I have creepy burning and tingling feelings in my fingers.

I get heart palpitations.

My shoulders and neck always hurt.

My mother has the same issues.

I'm on day two of a gluten-free diet. If after 3-4 weeks I don't feel better, I plan on branching out to all of the major allergens. My boyfriend is a hippie med student and plans to stick to the diet with me. Ever the optimist, he is excited that he will get to "develop new recipes".

I would like your opinions, and I will keep you updated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TPT Explorer

Good luck. I hope that this is your answer. It sounds like bread, (and pizza, and bagels, and cereal and pasta...) would be small price to pay.

Takala Enthusiast

You could either try getting a celiac panel run and risk flunking it while you are still on gluten, if you are the type that needs an "official" reason to do anything. If you pass, you may then receive the Official Diagnostic Seal of Approval

Chiana Apprentice

I think that some people feel the label, after all of those years of being told there was nothing wrong with them, is vindication. I lost my last job because I was so tired I couldn't get out of bed some days. I've lost boyfriends and strained relationships with my friends and family. I just want to be better. I don't care how I do it or what the disease is called.

My boyfriend is fantastic. He wants to become an ER surgeon, and 'retire' into research. Perhaps I will convince him to look for better ways to test for Celiac disease. :)

Skylark Collaborator

Good luck! I hope you feel better on the diet. By the way, a lot of people find it really helpful to go off dairy at first too.

I think people are overly attached to diagnostic labels too. Gluten makes me sick. I don't eat it.

  • 2 weeks later...
Chiana Apprentice

So, I'm a little over two weeks into the diet, and was feeling better until my period... :( My menstruation has NEVER been this bad before. Is this common?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Iron loss and potential celiac.

    2. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Iron loss and potential celiac.

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Iron loss and potential celiac.

    4. - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
×
×
  • Create New...