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sillycinder

Asca Antibodies And Celiac? Scope Tomorrow

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Hey everyone,

I'm new here, as you can probably guess. I went gluten-free (or at least I thought it was gluten-free, but it was probably more like gluten-low) in the Fall of 2008 after a suggestion from my college's health center after I had a bad bout of canker sores (12+ at a time) which wouldn't go away. I had started having problems in 2007, when I gained 30lbs in 2 months, and started having some GI issues, but nothing that was too bothersome besides the weight gain. I was bothered by the weight, but chalked it up to the freshman 15x2. However, the canker sores were so unbearable that I could barely speak. And so I tried gluten-free. Needless to say, I thought I was gluten-free, but by that I mean I didn't directly eat anything with gluten in it, but for example, I thought it was okay to peel the cheese off pizza, which I've now learned is a no-no! My canker sores went away within 3 days, and I didn't have anymore GI issues. Anyways, this September I started having D almost every day, or every other day. The canker sores came back as well. I don't know if I became way too lax about the diet, even though it wasn't strict enough to begin with, or what was happening. After a couple of months of D, I restarted eating gluten since I figured that couldn't be my problem. I went to my PCP over Thanksgiving break, and she ran blood tests on me, which showed negative for the Celiac panel, but also showed low IgA total serum. Also, my results showed low CO2. She sent me to a GI doctor who strongly suspects Celiac, due to the fact that I did have a good response to the diet, and due to the fact that most of my family on my mom's side of the family have Celiac (which I didn't find out about until recently). He did more blood tests, and I came back positive for ASCA antibodies, which I guess are supposed to be positive for Crohn's Disease (he ran an IBD panel), but he said he has seen as positive for many Celiacs patients? He still suspects that Celiac is the culprit behind all of my issues.

Has anyone else has positive levels of ASCA antibodies?

I'm having the endoscope procedure tomorrow morning, which I guess is technically this morning. I'm a little nervous, I must admit. I guess if the endoscope doesn't show Celiacs then I need to have a colonoscopy later this week to check for Crohn's, especially since my paternal grandmother died of colon cancer. Hopefully I don't have to have a colonoscopy though, since I'm only 21! I'd rather wait a bit before that's really necessary...

Does anyone have any tips or hints about what to expect, and how to make this whole thing easier? You guys seem to actually know what you're doing, and I really have no idea!!

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Welcome to the board. After your scope today go gluten free strictly. If you start out with whole unprocessed foods it is the easiest way and the fastest way to heal. Read as much as you can here and ask any questions you need to. Do be sure to get your own new toaster and replace colanders and wooden cooking utensils. Also check your toiletries and makeup. I hope you are feeling better soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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wow, it sounds like u have a really great openminded doctor! that's great that despite your positive on the crohns antibodies, that he still is considering celiac. from everything ive read, regardless of your celiac dx or not-> that Gluten/Wheat can cause crohns. so, that is great that he's on top of it.

keep in mind that biopsies can still be false negative... he may not get samples from damaged areas, or you may not have damage yet but still have it. its so very tricky. you should of course consider doing the diet anyways, because gluten & wheat have been linked to crohns and COUNTLESS autoimmune & inflammatory conditions.

i hope you get all your answers. ive only had the colonoscopy- the procedure itself was really a breaze! the prep was a pain in the A, literally with all the laxative potions... and i had painful gas for days after- but most people dont. my sis has already had a colonoscopy and she's 18. my 2 friends & i have had them in our 30s... so, dont stress ... its better to get it done and make sure everythings ok, and have any polyps (benign or otherwise) removed.

good luck! hope u feel better


1986- Elevated Speckled ANA/no Lupus.negative Sjorgens

2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.

no biopsy (insurance denied)

6/2010- Enterolab Gene Test:

HLA-DQB1 Allele 1 0302

HLA-DQB1 Allele 2 0302

HLADQ 3,3 (subtype 8,8)

7/2010- 100% Gluten Free

8/2010- DH

10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

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Thanks for your responses! My dr is great; he's young, really knowledgeable and up on the new data, and openminded about everything. The scope is done, and it was pretty easy. I guess he took a whole bunch of biopsies, so we'll have to wait and hear back about that. He doesn't think that I'll need to do the colonoscopy after what he saw with the scope, and he said he's still 99% positive that it's Celiac, so I've started a strict gluten-free diet as of today. Hopeful it work quickly!

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