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Happyw5

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Happyw5 Explorer
Happyw5
Posted

HI, I am 32 years old and I have 5 children in 7 years. After my 3rd baby I was extremely sick (back in 2003) I had every test done. I had a colonoscopy, endoscopy, barium x rays,ct scans, stool samples, blood tests. My eosiniphill count was 30% which is very high. I finally asked if I could see an allergist because my family has alot of allergies.(My sister is allergic to all cinn, cloves, and other spices. My brother is allergic to anything with feathers(turkey,duck, etc) and anything with fuzz (peaches) and peas) I went to the allergist and she said I was allergic to peanuts, I have Gerd, and IBS, and Oral allergy syndrome. I felt great after giving up peanuts. Two babies later in 2007, I started getting the same symptoms again. I fell asleep after eating and my eosiniphill count went up again. I went to the allergist and I was allergic to wheat. I give up wheat for a year and never felt better. My insurance changed and went to a new dr. He ran new tests and told me I would benefit from allergy shots, which I have been getting for 2 years, and has greatly improved my outside allergies. He told me I could try to eat wheat (my celiac test was negative) and if it didn't bother me, then I could have it. (Thinking that it was linked more to my "grass" allergy, the allergy shots may help) Well I started eating wheat and I was fine. Now for the last year and half I go on wheat and off wheat, not knowing if it bothers me, and not wanting to give it up! Since August I have noticed alot of things going on with me.

*I put on 30 pds in a month (and have always been fine with weight--9 months preggers I was 148 pds with all my kids) and now I weigh anywhere from 161-167 pds. I do yoga, I workout at the gym 4 days a week and with 5 small kids and 5 dogs, I am very busy..

*I have tingling in my fingers and hands through out the day and night

*I have had vertigo since my last baby was born and it seems to be getting worse

*I lose alot of hair

*I am constantly itchy--everywhere--including my scalp and face--and elsewhere

*Have had a rash on my arms and chest since summer (gets worse in heat or shower) I think it is called keratosis pilaris

*My ankle hurts and I had plantar fasciitis a month ago

*I have always been regular with menstrual cycles and now only get them every other month

*I have had some very bad reactions lately with pizza, and now that I am trying to eat alot of wheat, so I can get tested, I have noticed a very blah stomach ache constantly and just a feeling of exhaustion.

I went to see an encronoligist about my thyroid (my mom and sister both have a hypothyroid) she said mine was fine and my symptoms could just be in my head. She said if I had a pill to make you skinny, then I would take it!

I am going to my allergist tomorrow and he has always been so helpful, hopefully he will help me. I just wanted to see if these symptoms were typical of Celiac or a gluten sensativity. I have googled it, and I get so many different opinions, I don't know if I am on to something of just imagining it! Thanks for any advice...

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eatmeat4good Enthusiast
eatmeat4good
Posted

I would vote yes yes and yes. It all fits. Even if you test negative for Celiac, as you wrote, it could be gluten intolerance. IF it is, then the reason you haven't had relief is the on again off again wheat allergy you have been treating. I hope you get tested quickly and you can go off gluten and then start avoiding cc also. Once it is all out of your system you would then recover slowly and steadily if that is the problem. I too gained weight very very fast before I knew the problem was gluten. It was unbelievably fast and never left until I went gluten free. I think it is related to malabsorption, swelling and inflammation. With all those little ones, I hope you find your answer fast. It certainly all fit Celiac as I read your post.

Happyw5 Explorer
Happyw5
Posted
  • Author

Thanks for your response. I went to my allergist today and I wanted to marry him!!! He was so nice and understanding. Even if he thought I was crazy, he helped me. He is giving me a full celiac panel, gluten allergy test, thyroid antibody test, and a kidney and liver function test. He said even if the gluten and celiac test come back negative, that they are not always accurate and I should try the gluten challenge. He said it could also be my gall bladder. The results will be in the end of the week, so I will let you all know.

eatmeat4good Enthusiast
eatmeat4good
Posted

That is so wonderful! You had a good experience with a Dr. Marry him! Marry Him! If you can't do that, at least tell him how wonderful he is for covering all the bases for you and for following up on all the avenues. I have never met a Dr. like that. I had 26 Dr.s and not one of them would consider anything but depression inspite of the sores and the fact that I had gained from 120 to 180 in 6 months. Unbelievable. I was stuck with fibromyalgia as a diagnosis...without ruling anything else out.

Only when I found this site did I realize what was wrong and I am in the 4th month and my muscles are finally wanting exercise and my brain is working find. I am given back to myself. I want to marry Scott. But I hear he is already married! <_< But you can be sure I know who to thank for my rebirth when I get to the guy above...Scott is the man. I would have been lost forever without this information, this site, and this support. I have a deep gratefulness I carry with me wherever I go. And I have gotten 10 people to go gluten free and found that it helped their various problems without Dr. intervention or blessing. So the information and miracles are being compounded and growing exponentially. I hope it works that way for you too sweetie. I will look for your update. :)

Happyw5 Explorer
Happyw5
Posted
  • Author

I did get part of an update. The only celiac test I got back so far was Iga to gluten and it was 0.35, which is negative apparently. Other tests will be back next week.

I did find out that I have an allergy to wheat and egg. My nut allergy came back positive, we already know I am allergic to peanuts, but I eat alot of almonds and I eat that amazing hazlenut spread, so he is going to check those out individually to see if I am reacting. I also found out that I have high antibodies to my thyroid, which is probably why I am so itchy. I started the gluten free diet (Started Wednesday) and I am feeling better. I definitely need to go wheat free, but should I just stick with gluten free?

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    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      By ThomasA55 · Posted

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      Iron loss and potential celiac.

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