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Questions About Bloodwork


suziq0805

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suziq0805 Enthusiast

So I'm pretty new here but have recently been reading a lot about celiac disease online. My 9 month old son gets sick after eating grain products and after several negative allergy tests we wonder if it is celiac disease. We have an appointment with a pediatric GI doctor next month for him. If he would have celiac disease I began wondering if I could have it. I have times where I get stomach cramps and gas. I also go through times of muscle pain/weakness and some neurological symptoms. I went to so many doctors for it and nobody could find anything so we just thought it was an overuse injury due to being a music major in college. This morning I pulled out my medical records and began going through my blood test results since I remember some of them being abnormal but not fitting with what I was being tested for and was curious if it could give any clues into possible celiac disease for myself. I really have no idea what I'm reading here so thought maybe some people here could help;

My paperwork says "the ANA screening test was positive, but her titer was less than 1:40"

More labwork a couple years later says I have a low RDW result and a high monocytes percent.

I think the RDW can indicate anemia. After having my son I was anemic and was put on iron pills. I remember being told that the ANA is for autoimmune disorders. At his appointment next month if the doctor thinks he may have celiac I'm wondering if I should ask about being tested myself. Does anyone here have any idea if these abnormal blood tests could be related to celiac disease or not?


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ravenwoodglass Mentor

Many of us are anemic because we don't absorb nutrients from our foods. Your symptoms could be celiac related and it wouldn't be a bad idea to just go to your doctor and ask for them to run a full celiac panel. Be aware that there can be false negatives for both children and adults so when you are done with testing you need to give the diet a good strict try for a couple of months. Don't go gluten free or gluten light until after the tests are done though as that will insure a negative result.

Marc49 Explorer

Many of us are anemic because we don't absorb nutrients from our foods. Your symptoms could be celiac related and it wouldn't be a bad idea to just go to your doctor and ask for them to run a full celiac panel. Be aware that there can be false negatives for both children and adults so when you are done with testing you need to give the diet a good strict try for a couple of months. Don't go gluten free or gluten light until after the tests are done though as that will insure a negative result.

I am sorry for breaking into anothers thread, but something you said speaks to me.

I just posted a thread myself about further testing, but it isn't up yet.

While my gene test came back positive, and I have symptoms, I actually have upper 1/3 iron levels.

Also an extensive fecal test showed that my absorption is normal.

Please take a look when it shows up.

Thanks and I apologize to the thread starter.

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    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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