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Please Help - Need Input On Symptoms


Sick-Mommy

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Sick-Mommy Newbie

I have been suffering for eight years with a horrible stomach condition and I desperately need to find out what is going on with my body. If I could just share my symptoms I have been having for years with everyone and see if it's symptoms you have experienced with celiac disease to see if I need to be tested or move on looking for answers. Thank You

*** Painful Stomach Ache (during eating or right after)

*** Sulfur Burps (so horrible - like egg burps)

*** Violent Vomiting then hot to cold

*** Achy Body & Joints

*** Weakness

*** Weight loss

*** Clumps of hair loss

*** Diarrhea - constipation (sorry)

I am only 26 and someday's it feel like my body has just given up on me and I can't handle it anymore. Any help or information anyone can give will be greatly appreciated and thank you for your time.


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Dixiebell Contributor

Hi Sick_Mommy.

I had aches and pains, weakness and constipation among many other symptoms. My son and I tested negative but chose to try gluten-free and it has helped us both.

Have you had any testing done, celiac or other? I believe those could all be symptoms.

You should get your thyroid checked and vitamin and mineral levels to see if you are low in any.

Celiac tests:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level

Deamidated Gliadin Peptide (DGP) Antibodies, IgA & IgG

Sick-Mommy Newbie

I have been to the doctors and ER many times but sent home every time saying it's just food poising, lactose intolerant or the flu. I have not found any doctor that will listen to my symptoms and take me serious

mushroom Proficient

Don't let them brush you off. I know this is easier said than done, but just say "I am not leaving until you give me a lab form for a celiac test." Explain how many years you have had the symptoms, how many times you have been brushed off, and say you need to know now whether or not you have this disease.

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      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems.
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