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X-Rays Showed A Lot Of "air Bubbles"


sydneysmommy

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sydneysmommy Apprentice

So I put my foot down like so many of you suggested and went to the children's hospital full steam ahead to get my 22mo tested for celiac (distended belly, fussy, chronically ill, small arms and legs, 10th percentile weight and height, always fussy following eating, seemingly lactose intolerant etc. ps. I have celiac disease... obvious red flag).

GI specialist wants to do xrays and bloodwork first but said he thinks the only real way of telling is the scope (he's hesitating to put her through that yet, especially bc she's young and it may not come out clear one way or another).

anyway...

i insist. im so sad for her.

they did the blood work out (don't know until monday) and xrays.

immediately the tech said she sees A LOT of "air bubbles" in her stomach and asked when the last time she ate. I explained I had her eat a lot of "gluten type things" that day and the last time before testing was about an hour. She said "ah. okay".

can someone tell me (because I have zero patience whatsoever) what that could mean?

gas obviously? indigestion?

is my poor child walking around in constant discomfort???

HOW LONG UNTIL I CAN JUST PUT HER ON A STRICT GLUTEN FREE DIET????

im so frustrated. i want her better.


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mushroom Proficient

immediately the tech said she sees A LOT of "air bubbles" in her stomach and asked when the last time she ate. I explained I had her eat a lot of "gluten type things" that day and the last time before testing was about an hour. She said "ah. okay".

can someone tell me (because I have zero patience whatsoever) what that could mean?

gas obviously? indigestion?

i

She could be trying to estimate food transit time, fermentation time and amount, possible aerophagia (swallowing air) which is what my doctor always said I must be doing. Some of us are just a lot more gaseous than others.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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