Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New To Gluten Intolerance, Does This Sound Like Celiac?


kait-o

Recommended Posts

kait-o Newbie

This past semester of school I have been struggling with illness on and off again. I've been to the university doctor who is at this point boggled. It doesn't help that I have to eat dorm food.

When I first started feeling bad, I went to the doctor with sharp abdominal pain, fatigue and headache. I felt like I'd been hit by a bus. Doc thought it was a hernia or a issue with my gallbladder I had to get an ultrasound. I had neither a hernia or gallbladder issue.

I went back to the doctor when the pain didn't cease to exist. He thought that maybe I had something wrong with my ribs or a possible gluten allergy.

I decided to cut gluten out of my diet and found that it had worked. For about four weeks my pain was relieved until i suspect I had eaten something with a bit of gluten and was writhing in pain just below my ribs and in my upper back. This has happened one other time, just a couple days ago.

Other symptoms:

headache

bloatedness

tired

nausea

joint pain

poor blood circulation

itchy scalp

dry skin

bad, chipping flaky nails

and undulating weight gain and loss

irritable

gassy

not able to focus in class or to others

sensitivity to bright light

my mother is scheduling me an appointment with my own doctor when i go home for spring break. do i really need to be eating gluten for more than a month for it to be detected in an actual test?

please help?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



etta694 Explorer

Others who have been the testing route will fill in here but from what I understand, yes, you need to be eating gluten for the antibodies to show up.

Some of your symptoms are very much like mine. I have had a lot of discomfort or pain in under my ribs and under my shoulder blade in the back. Also bloating, constipation, exhaustion, feeling unwell (I don't even know how to describe it), foggy thinking, dry skin, and I also had a cough that wouldn't go away. The clue here is that cutting out gluten worked. That's how I figured it out too.

So you really need to have a diagnosis? You may be the best 'diagnoser'. :)

Now that I am gluten free I feel so much better and Zantac takes care of the pain in the back and under the ribs.. it only bothers me intermittently now.

You'll have more good input so for now, wish you the best.

Link to comment
Share on other sites
kait-o Newbie

Others who have been the testing route will fill in here but from what I understand, yes, you need to be eating gluten for the antibodies to show up.

Some of your symptoms are very much like mine. I have had a lot of discomfort or pain in under my ribs and under my shoulder blade in the back. Also bloating, constipation, exhaustion, feeling unwell (I don't even know how to describe it), foggy thinking, dry skin, and I also had a cough that wouldn't go away. The clue here is that cutting out gluten worked. That's how I figured it out too.

So you really need to have a diagnosis? You may be the best 'diagnoser'. :)

Now that I am gluten free I feel so much better and Zantac takes care of the pain in the back and under the ribs.. it only bothers me intermittently now.

You'll have more good input so for now, wish you the best.

thanks for your input etta! i really appreciate it and it's good to hear that i'm not the only one with these symptoms.

Link to comment
Share on other sites
etta694 Explorer

If you explore the forum you will see that at the bottom of the posts some members have posted their history with symptoms and medical steps taken. It makes for very 'cathartic' reading.. your symptoms are bound to be on others bios. They sound so familiar. If you don't get enough info - repost. See Ya :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,209
    • Most Online (within 30 mins)
      7,748

    Yankavich
    Newest Member
    Yankavich
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...