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Questions About Endoscopy

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Hello all! I'm almost positive my mother and I have Celiacs Disease, but we have decided to get tested anyway. We both went to "one of the best doctors in the area". They have set her up for an endoscopy and a colonoscopy sometime next month. Every person I have talked to that was tested, has had both a colonoscopy and an endoscopy but for some reason however, my doctor only wants to give me a colonoscopy. Now maybe I am totally ignorant to how this disease and it's testing works, but I was under the impression that I needed to get a piece of my stomach tested and I don't think you can can get there in a colonoscopy. A good family friend of mine who has Celiacs Disease brought this up to me, and now I'm worried I can't trust my Doctor. The blood work has been sent off, and now I have to wait... but I don't want the procedure to come around next week and waste my time with a doctor who isn't doing what he's supposed to. Please share stories and advice. Thank you!

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I had both a colonoscopy and gastroscopy and am glad I did. I was told that the gastroscopy was to check for celiac (biopsies) and the colonoscopy was to rule out any other potential problems. Several biopsies were taken from each. If I were you I'd really push for that.

Were you told you need to eat gluten (and lots of it) for at least two months prior to the scopes? My surgeon, doctor and dietician told me to eat the equivalent of 4 pieces of bread each day (starting gradually). I did so for three months and frankly I loved it as I have no symptoms (I am a silent celiac).

The best of luck. :)

<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

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A colonoscopy does not test for celiac disease. Period.


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson


Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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Both procedures are usually done.

The endoscopy is to look for damage to the villi in the upper part of the small intestine (diagnostic of celiac disease).

The colonoscopy is to ensure that there are not other problems present in the colon. It cannot diagnose celiac disease, since the damage caused by celiac disease is not in the colon.


Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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