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This Celiac Brought His Igg Levels Down From 33 To 2


Evangeline

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Evangeline Explorer

As I browse these Celiac message boards, I see so many Celiacs have leaky gut syndrome and allergies to so many foods. Medical studies find that the intestines of many Celiacs remain inflamed and damaged 10 years after beginning a strict gluten-free diet.

Then there is Dr. Osborne who is a Celiac doctor who advocates a grain-free diet for all Celiacs. He points out that gluten is in all grains and he believes that many Celiacs react to gluten in general. He opposes the present medical community's belief that all Celiacs only react to gliadin which is found in wheat, barley rye.

I found a blog written by a Celiac who decided to try Dr. Osbrone's advice. He took IGG tests before and after. This is from his blog:

"My IGG level dropped from the 70's initially [after a gluten-free diet], but never got any lower than 33. My doctor suggested in 2005 that if the IGG level was still in the 30's after a couple years on the diet, it probably would not improve, and I most likely had some permanent damage from the disease that kept it still high. So I stopped testing at that point, deciding it was not worth the cost to track my progress. Out of curiosity, I decided to retest these antibodies again [after a grain-free diet] and to my amazement, my IGG level was at a 2, the lowest it has been since diagnosis and within normal range which is 0-19. This was exciting news.

His absorption also improved when he changed from gluten-free to grain-free:

"Ferritin previously at 26 was now 73 (normal 10-291)

Vitamin B12 previously at 320 was now 451 (normal 211-911)

Vitamin D previously at 33.1 was now 39.2 (normal 4.8-52.8)"

"To me this is confirmation that Dr. Osborne and Elaine Gottschall were on the right track although years apart. So here I am on a grain-free diet hoping to share the wonderful information these two have given me with you."

Source: Open Original Shared Link

If many Celiacs are reacting to all grains because of gluten and not gliadin, it would be important to make sure that all vitamins and supplements are also grain-free.


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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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