Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Here, Definitely Need Help

jlafrance

Recommended Posts

jlafrance Newbie
jlafrance
Posted

I am 19 and have had stomach problems all my life, in February I went on a gluten free diet just to see if it would help. It has and I am feeling mostly better, but now I need the official diagnosis for some paperwork I have to fill out. If I don't get the official diagnosis I can't get the help I am applying for. My son also has symptoms of Celiac's but his doctor won't test him unless I have a confirmed diagnosis. I know you're supposed to go back on gluten to get the tests, but I don't think I'd be able to deal with the pain and sick feeling I get when I've been eating gluten. Are there any tests that can be done while on the gluten free diet? I've heard there is a camera pill that you can swallow instead of the biopsy, would that help at all? I'm pretty sure I have damaged villi still because my stomach/intestines still have pain sometimes (for no apparent reason), but I don't know what to do. Also, I just started going to a community clinic for low income people and my doctor will not listen to me about the Celiac's or give me a referral. Should I look for a gastroenterologist or what? There aren't many doctors in my area that know about Celiac's (at least non I've been able to find), so I was thinking I may have to go to Seattle or something to get a doctor that knows what they're doing. Do you think I'd have to get a referral to do that or could I just call and schedule an appointment with them?

Thank you for any information.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Ouch, you did it kind of exactly bass ackwards! :) The testing should be done first, before going gluten-free. The problem with doing it afterward is the antibodies are decreased to the point they may not show up in the blood tests. And the villi are healing so may not show enough damage in an endoscopy biopsy either. Since you have been gluten-free since Feb-11 you are most likely going to have negative tests on blood and biopsy.

The usual recommendation is to go back on gluten for 3 months prior to testing. That can be very hard to do and damaging to your body. And even then the tests for celiac can be negative because they are not 100% accurate at all times anyway.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,206
    • Most Online (within 30 mins)
      7,748
    Bayb
    Newest Member
    Bayb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Constant low back, abdominal and pelvic pain!

      By ButWhatCanIEat · Posted

      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      Isolated DPG-Iga

      By trents · Posted

      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
    • knitty kitty
      Dehydration, dry skin and full body tingling when overheating

      By knitty kitty · Posted

      Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
    • Soleihey
      Lymph nodes

      By Soleihey · Posted

      Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
×
×
  • Create New...