Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How Long Does It Take?

AlwaysHope

Recommended Posts

AlwaysHope Rookie
AlwaysHope
Posted

I have FM and but it is my husband that we suspect has celiac disease.

I am going gluten-free too because the diet has been recommended as

good for FM too.

My husband is 40 lbs under weight and very malnourished.

He eats very well and has had every other test and they are all

good.

celiac disease is probable.

Has anyone that was very underweight experienced gaining

health (and weight back) with the gluten-free diet?

How long did it take .. approx?

Thanks,

AlwaysHope

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Well the time it takes for symptoms to go away varies. I was noticing a difference by the 3rd month but I really was not back to normal until the 8th month. Everyone is different though and for some they may see a notice alot quicker. It depends on the damage done, age, etc.

I experienced weight loss of about 20-25 pounds. The diet took care of it and once I started to absorb my food then my weight started coming back.

Link to comment
Share on other sites
AlwaysHope Rookie
AlwaysHope
  • Author
Posted
Well the time it takes for symptoms to go away varies. I was noticing a difference by the 3rd month but I really was not back to normal until the 8th month. Everyone is different though and for some they may see a notice alot quicker. It depends on the damage done, age, etc.

I experienced weight loss of about 20-25 pounds. The diet took care of it and once I started to absorb my food then my weight started coming back.

<{POST_SNAPBACK}>

So it took about 3 months before the weight started to come back on?

I am glad it helped you. I have a lot of hope that this is the answer for both

my husband AND I.

Nothing has made as much sense as this diet. I have had some of the same symptoms for years, myself.

Do you hear people with FM having celiac disease as well, a lot on here?

Thanks for your time!

AlwaysHope

Link to comment
Share on other sites
AlwaysHope Rookie
AlwaysHope
  • Author
Posted
Well the time it takes for symptoms to go away varies. I was noticing a difference by the 3rd month but I really was not back to normal until the 8th month. Everyone is different though and for some they may see a notice alot quicker. It depends on the damage done, age, etc.

I experienced weight loss of about 20-25 pounds. The diet took care of it and once I started to absorb my food then my weight started coming back.

<{POST_SNAPBACK}>

BTW Jer 29:11 is my all time fav scripture!! :)

Link to comment
Share on other sites
KaitiUSA Enthusiast
KaitiUSA
Posted

Yes, it does take time on the diet but believe me it is well worth it. I feel so much healthier then I did before. It took about 3 months and then by that point I put on maybe about 5 pounds and then it started to really come on after that. Have to give your intestines time to heal and start absorbing again though.

I hope it helps you guys :D Let me know if you need any help with anything too

Fibro. is highly connected with celiac. It is especially seen in people who have gone a long time undiagnosed and have not been on the diet.

I'm glad you like that verse...my mom used to tell that to me when I was feeling sick alot and it really gave me hope. :D

Link to comment
Share on other sites
AlwaysHope Rookie
AlwaysHope
  • Author
Posted
Yes, it does take time on the diet but believe me it is well worth it. I feel so much healthier then I did before. It took about 3 months and then by that point I put on maybe about 5 pounds and then it started to really come on after that. Have to give your intestines time to heal and start absorbing again though.

I hope it helps you guys :D Let me know if you need any help with anything too

Fibro. is highly connected with celiac. It is especially seen in people who have gone a long time undiagnosed and have not been on the diet.

I'm glad you like that verse...my mom used to tell that to me when I was feeling sick alot and it really gave me hope.  :D

<{POST_SNAPBACK}>

Thanks again Kaiti. We are starting the diet now. In both of our cases neither of us has much to loose by going on a gluten-free diet.

We have been doing the wheat free (not neccessarily gluten-free) diet now for a month anyway.. it's almost the good news for us! LOL

With this, we can atleast have SOME "bread".

My husband actually feels encouraged with the gluten-free diet.

When I said "let's try the no wheat" we pretty much stayed of ALL breads, pasta,

etc.

So this is "good" news actually.. lol

I will let people know for sure!

Blessings,

AlwaysHope

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...